Hi l have a terrible itch on my forearms upwards shoulders ,and above waist on my back ,it started two years ago and is now driving me mad ,l think l have tried everything from steroids ,creams light therapy which only made it worse my Dr says my liver function is just below normal.l am taking 8 portion a day 2 determine at night but I'm still itching and priming. I can't sleep with it ,l am so irritable
Itch is driving me mad : Hi l have a... - British Liver Trust
Yes it made my worse l told them l could not go on holiday because sun made it worse ,so really couldn't understand there thinking l go back at the end of Jan to see the consultant ! I had 22 treatments in total should have been 30 but the light therapy clinic said to stop as it was not doing any good l have not got psoriasis they don't know what it is .
I'm on fexofenadine 180mg, works for me xxxx
Insist on a full 'liver function check', as well as general blood tests and also a check for AMAs (antimitochondrial antibodies). Also insist on seeing a dermatologist. It's probably nothing, but your GP needs to be shaken out his complacency, you should not have to put up with being fobbed off in this way. Can you see someone else in the practice? Also, talk to the advisors at 'BLT' who 'host' this site: link to their website at top of page. Take care.
My itching started years ago when my liver disease was in its infancy (PBC and AIH) and my bloods were only slightly awry. My gastroenterologist only decided to give me a liver biopsy because of my mums liver disease history (the same) and the results showed I had the beginning of the same disease. The itch does not seem to correspond with how severe the disease is and some people do not suffer from it at all. My mum only ever had it mildly whereas over the years I have had it dreadfully in different areas or sometimes all over. It’s very debilitating and embarrassing and can make you feel awful - you should try to get tested by a good gastro or hepatologist.
Hi 1947san, I have been going through similar symptoms and have tried phototherapy, Benadryl, Cortisone /anti inflammatory ointment and anything else you can think of including steroid injections. All I can say to you is I take the Benadryl at night which helps me sleep. Unfortunately , I also have what’s called Kryle disease. Little blisters form all around your ankles, wrists and the nape of your neck. They start to erupt (bleeding which than forms a tiny scab in the center of it.) Eventually, it falls off and repeats itself. In other words, it never goes away never, ever, ever goes away. I scratch myself silly at night to the point where I’ve had to wear my clothes inside out when I am at home . The seems irritate it more. it’s in my scalp as well. The other it’s just called puritus. I was told that the Kyrle disease comes from my diabetes/liver. They had to take three biopsies to determine what it was. The problem with phototherapy is, it can make it worse! it’s a chance you have to take. If you are able to take a (steel cut) pure oatmeal bath, it might ease the itch for a while. Like others have suggested, you need to see a dermatologist to find out the root of the puritis. In Canada, I have a team of specialists that work together to come up with the best solutions for me. I have a lot of disabilities including Hep-C and insulin dependant diabetes. I’m underweight as well. So ask to be referred to a dermatologist. I wish you all the best for the coming New Year❣️🇨🇦
At risk of being redundant... Try taking measures to PREVENT the itching*.
Milk Thistle capsules.
Alpa Lipoic Acid capsules.
Unsweetened almond milk.
Less than 900 mg. Of sodium a day.
(If you continue to itch try Gold Bond lotion w/ c. Oatmeal.)
Vitamin D also seems to help me.
Consult a legitimate holistic therapist- at the very least a well versed employee of a health food store-