Feeling blessed

[nickiwj]

Hi everyone,

Today is my one year liverversary 🎉 and nothing could have prepared me for the mixed emotions that I have felt these past couple of days especially. It’s been a hard recovery but I knew it would be as I was so poorly before my transplant and faced a long stay in hospital afterwards. I released a balloon in memory of my donor angel 💚

I have an incisional hernia which I have been told will need operating on. Decisions and how and when it will be done will be discussed when I see my transplant surgeon in February.

Stay well everyone and for those people on the waiting list, never give up hope that you will get your precious gift 💝

[h0b0]

It's certainly a time of mixed emotions. Hope you go from strength to strength.xx

[charleeeeeeeeeeeee]

Love this! Gives us all hope and love and thanks to our beautiful donor and family. Congratulations, and good luck xxx

[Hidden]

Well done! Hope you get many more years of good health.

[1football]

Lovely to hear stories like these hope you continue to recover well

[Faithfull]

Your post was beautifull.

I really grateful your post answered a lot of very deep inner thoughts questions that you just don't ask but what you put into a true to heart blessed wonderful person and wish you all the happy healthy new year after new year and many more .

[19581979]

I wish you well with your health for the future and that everything soon gets less painful and the hernia is dealt with quickly and successfully. Obviously i also look forward to hearing that your liver stays well and enables you to have a happy active life for many years to come.

Gx

[kurtymac]

That'd a great story and I'm really happy to hear that everything has worked out so wonderfully. Here's to many more years ahead!

[vulnerable]

Congratulations 😘 It is encouraging to hear those words from someone who has been through it. I am having too many ‘dark days’I I feel so unwell it is difficult to keep going. Xx

[Bonair in reply to vulnerable]

Don’t give up. My husband was in and out of hospital constantly and very poorly to, but miracles do happen. It will be a year in May when my husband received his liver from a brave family and hopefully you will receive your good news soon. Take care and try to be strong x

[Marydel63]

You give us all hope thanks for sharing

[Gaynorlowson]

Well done , keep getting better and stronger xx I’m sure your donor is looking down on you and smiling at a gift well given xx

[Hidden in reply to Gaynorlowson]

Do pleased for you. Carry on going from strength to strength. Xx

[Millie09]

Lovely pic ! And thank you for giving us hope .. 10 yrs this June living with cirrhosis. Alcohol related. Stopped the drink but relapsed when my dad died.

Now i have fatty liver which is making my cirrhosis worse. I keep on fighting..but its hard .happy new year x

[Hidden in reply to Millie09]

Happy New Year to you all

You are doing really well Millie09, keep fighting . 10 years us such a long. You are a remarkable person to keep in fighting.

I am feeling rough at the mo. Having an mrcp on the 28th Jan, see consultant on the 1st Feb where he's going to decide what to do with me!! Xxxx

[Millie09 in reply to Hidden]

Hi lynne .sorry to hear you are not so good hun.. you are a tough cookie!!! .keeping everything crossed for you.xx take care..love linda x

[nickiwj]

Thank you for all your lovely replies everyone 💕.

I had pbc for over 12 years and was always told I would eventually need a liver transplant. I was just 30 when diagnosed with pbc so over the years, I had deteriorated. Was on the waiting list for 4 months before being admitted last December and then prioritised on the list. I was so out of it and my kidneys gave up, my liver had failed and my heart was weakening. My family were told that I had probably “missed my window” the day before I had my transplant. To be told by doctors how very close I was to not making it was a shock. I am eternally grateful to my donor and their family as I was told that if my liver I received had not been suitable, I would not have been strong enough for the next call/offer.

If my past year has taught me anything, it is to always remain positive, keep as healthy as you can and definitely to live life to the full.

Met some fab people on this forum and when I was in hospital.

Stay well everyone and have a lovely day xxxx

[Millie09 in reply to nickiwj]

Hi nickiwj.thank you for sharing your rollercoaster journey. It must have been such an awful thing for you and the family. I do worry how much longer can i go with 10 yrs cirrhosis and f4 end stage fibrosis and now fatty liver. I do try to remain positive but as they say knowledge is power and i know how fast things can change hence why i dont make plans for anything.

So glad to see your doing great! Keep going 😊.. Linda xx

[vulnerable in reply to Millie09]

I empathise with you xx

[vulnerable in reply to nickiwj]

Very encouraging nickiwij good health to you xxx

[Dorset123]

Just over a year after my transplant. Still get pain & get very tired. My LFTs have got worse again but hopefully they can adjust my drugs & sort it.

However I feel so much better than before, seeing loads of the family & trying to be more active.

Seems it can be very up & down for many of us but you have to keep positive & never forget how blessed we are to get this chance of life! Best to everyone.