Hello I’m new to this site just signed out now I’m a transplant patient and my transplant was 6 years ago
I’m just wondering what everyone is doing to stay safe during this awful time with this virus are any of you self isolating at the moment
I’m so glad to be able to chat with others 😊
Hello Wilma
Firstly welcome to this wonderful forum of loving caring people who will be by your side as long as you want them to be!
Fabulous news that your 6 years on since your TP which is fabulous to hear about.
I'm not a TP patient but have been under investigation for almost 2 years with an autoimmune liver problem which is still ongoing.
I'm presuming some of my friends will be in touch shortly for a chit chat.
Take care and keep in touch .
Love Trish x
Thank you for the lovely welcome I will be back on later 🌸 xx
Hi Wilma, and welcome to our wonderful forum.
I have F4 cirrhosis, compensated, and no transplant. I am self isolating because of cirrhosis, and I am 72 years old. I have plenty of hobbies which keep me occupied, and of course phoning or Facetiming family and friends to keep in touch.
Just post whenever you want to, as there are plenty of TP recipients here to help, if you have any questions.
Take Care,
David
Thank you for the warm welcome I will be back on later or over the weekend 🌸 x
Hi
Welcome to this wonderful forum of kind, caring, compassionate and supportive people. I have compensated cirrhosis, diabetes type 2, under active thyroid to name but a few!! You will certainly get a lot of help and love on here.
There's one problem, you support Chelsea!! Sorry, only joking 😂 I support Oldham so we are no threat to you!! Love and hugs Lynne xxxx
Lol 😂 always a Chelsea supporter was born in London as well 😊 I’ve been to a few matches with the family and also support the Chelsea ladies to 💙💙
Hey Wilma. Welcome to the forum. I’m six months post my fourth liver transplant, but never mind that I’m also a Chelsea supporter, I have supported them for about 30 years. This is a great forum and there’s always someone to talk to if you need to. Take care xx
Hi smyally wow 4th transplant hope you are keeping well as safe 💚
I’ve supported Chelsea since a very young age like you I’ve 30+ years 💙
Will be good to chat to you more about how your doing
Stay safe xx
Wow!! 4th transplant!! . How are you doing?
Chelsea!! Oh no!!
I've supported Oldham since 1971 but haven't been well enough to go recently. Please take care and stay safe
Wowee Smyally!! That is amazing . How long was that over - in years I hope!
We’ll let you off being a Chelsea supporter since you have been through so so much!
Sorry guys I thought everyone knew my last transplant was my 4th. In 1995 I had 3 transplants in 6 months. My own liver failed because of an allergic reaction to some antibiotics, my first liver got damaged in transport and although it lasted me 4 months it never really recovered, the second liver only lasted 2 weeks because an artery became blocked. The third was a good liver and lasted me 24 years. It became cirrhosis because of the amount of medications I’ve had to take over the years for constant kidney infections, and my last transplant was September 2019. Now all we’ve got to deal with is Coronavirus. Stay safe and take care xx
Thanks for that smyally let’s hope that this one last many more years like #3. 24 years - that’s brill. 👍Wonder what the record time is?
All of us on here seem to be doing as much as we can to remain safe, it’s just all these other idiots out there 😕👎 who aren’t helping anyone, not least the NHS.
I think the oldest living liver transplant was in 1975. I don’t know how to add the link for the story on here
Thanks for that. I googled it and it is quite difficult to find anywhere that has that data - found one about someone who did 40 years but 45 years is even more amazing. Good grief! But then when you see how young some people are when they have their TP then....
Hi Wilma
Another big welcome from me as well 😀
I presume like all of us “recipients” you are on immunos and therefore you yourself are self isolating 😕. It’s a bummer isn’t it!! Like David, I have two hobbies (sounds like David actually has more 😀 - greedy so and so) that keep me busy thank goodness. But it so bad not to be able to see our 6 grandchildren - I think that’s what’s the worst of this situation - I mean not the worst obviously 😕 but for me personally and at this particular time....
Hope you are keeping busy too...
Miles
I know how hard it must be for you Miles as I know you truly adore your GC like most on here.
Yesterday I delivered some cheese scones to my son and found my GD sitting on the leather sofa blowing loads of kisses to me from the opposite side of the patio doors which truly pulled at my heart strings and as we all know this was a precious memory that will always be with me.
💓
Know the feeling exactly Trish. Of course being in a cheery mood - not 😀 - we can’t realistically count the days down till it ends can we. But hey think of that fabulous moment when we are finally released from our splendid (?) isolation 😀👍.
Aww, bless her. You must have been best to tears. How are you feeling today? Love and hugs Lynne xxxx
Lynne
You really do make me chuckle !! I'm ok other than my normal wired throat and not sleeping. Pains under right ribs ok, Esophagus behaving however itchy skin as returned ....lol
Not sure whether to go for routine blood test!
Love Trish x
Think you should!!! Love and hugs Lynne xxxx
Better than making you cry!! Xxxx
This must be so hard for you, I know you love your grandchildren to bits.
, Miles. My son and his girlfriend should have been with us this weekend but Ian has Crohn's and us on immunosuppressents so we thought it better that he didn't go on a crowded train. He has been working, said he wouldn't be paid if he was off, told him we would help out. Anyway, he is off next week and is hoping a letter comes from the NHS to say he can't work!! Take care and stay safe. Lynne
Quite right re Ian - it’s all proving very hard isn’t it - I saw one official post that used to words “pragmatic approach” and I liked that!
I think there are a lot of us waiting for this letter!
Milo
Yes, Ian's can't come soon enough!!! Take care and stay safe. Lynne
Hi Wilma
Welcome to our fun factory 😊😊😊.
I'm coming up to 3 years post transplant and all I'm doing is just following the advice being issued and finding out what fun things I can do around the house should we be confined to barracks anytime soon.
Hi Wilma
I'm new on here tonight and didn't know such a great chat & community existed. I haven't had a TP but have cirrhosis and very nearly died,many complications, ascites, many transfusions and long time in hospital but fighting fit now so just worried about going into work tomorrow or just self isolating.
Hope to chat with some of you lovely people as well over the next few days/weeks
Hi Tracy and welcome 👍
Surely you fall into the high risk/vulnerable category don’t you - or have you been told otherwise? Ah well all of us at risk/vulnerable people will apparently be getting a letter next week telling us to self isolate, so we shall all see what’s what! Do you think we can introduce an Appeals process - like they’re doing for estimated exam grades - if we don’t agree with the Category we’re put in 😀. Only jesting, of course!
Like others on here I have been self isolating (in a pragmatic way) for a week, because, although I have had a glorious TP, I have several other of the other underlying health conditions deemed to be “risky” - aaagh 😀.
Good luck whatever your situation turns out to be.!
Mikes
I see you've changed your name again 😅😅😅
Hi Tracy, great to hear from you and that you are much better. Most of us can relate to your awful symptoms and it's amazing that you still work. Have you checked it's ok to go back to work?
I'm sure you'll get loads of support from the lads and lasses on the forum, through good and bad.
Have a great day 🤗
Hi
Welcome to this wonderful forum of kind, caring,compassionate and supportive people . The support you will get is absolutely fantastic. I would have thought you would be in the at risk category. Please take care and stay safe. Love and hugs Lynne xxxx
Morning Wilma, many congratulations on your TP, it's lovely to hear from you. I'm currently on the list.
I'm looking forward to sorting my garden out with my younger son in between being his teacher, cook, cleaner, washerwoman...and mum!
How are you in these difficult times?
Keep smiling 😄 xx
Hi Wilma,
Welcome to the forum. I am waving from across the sea, self-isolating as much as possible here in America. 🙋♀️ I have F4 cirrhosis due to a long-term Hep C infection, which you probably know is, a blood borne virus.
Feeling very anxious, l have plenty of spring cleaning projects to get to, some even from last spring! 😯
😀😀👍
Hi Wilma wow I am doing really well currently in missing all you lovely folk who have just joined. I see lots of folk have been in touch already. So I just wanted to say apologies for my tardiness in reply. You will find lots of love and support here. For now sendings huge isolation hug xxx Jaycee
how to handle 'The Wait'
Post transplant aches and pains
How long have you been on the list?
Antibody mediated rejection 
Coping.
