Lactulose is NOT nice

[Chelle_]

So I am on 80ml of lactulose a day....this is to help my movements....which when I was listed was maybe 3 times a week....they told me they wanted me to go at least twice a day - I found this very funny.....so they put me on 40ml lactulose a day - nothing changed.....

So recently about a month ago they upped it to 80ml a day and now I am down to once a week......what is going on....I think all my medication is blocking me up....anyone else on anything different - I have tried movical (it works but I need to be within 20 meters of a loo all day....)

I don't think there is enough crap (excuse the pun) in my system to go at least twice a day! ha ha

[Millie09]

Hi chelle , i HATE lactulose 🤢.gives me nothing but stomach pain amd thats about it . I am on only 30ml a day .my consultant said i should be going 3 times a day 🤔.i just looked at my sister in a bewildered way lol . I dont go once a day . Im lucky if its once every 2 days . I will tell my consultant next tuesday when i see him .

The only other way is maybe more fibre in your diet ? My mum always told me liquorice was good but not tried it aa dont like it .

When i was really bad 9 yrs ago 8n hospital nothing worked and i was in so much discomfort and well blocked 😏.in the end i had to have an enama . Wished i could help more hun x

[Chelle_ in reply to Millie09]

Thank you. I will have a look and my diet and speak to the Dr's I know the Chemo is having an effect on my system.....so we shall see what happens! Im quite happy with the way I am at the moment - just the Dr's not so! lol

[jojokarak]

I was the same with lactlose I was on as much as you and still I needed regular enemas to the point I had them on prescription. Movical made me go more as you but they just reduced what I was on so I didn't go as much with loose . It's hard to get the correct balance I am afraid to say but it's so important to have regular bowel movements as it prevents the toxins building up in your blood stream x

[Chelle_ in reply to jojokarak]

I totally understand. I've had an enema once before - rather go with the suppositories though - I will speak to the Dr and see what they decide!

[carllovatt]

you must know that the lacky doesn't make you go, it does it's job in the large bowel and softens the stool and binds the toxins you may need to have something to encourage your bowels to work. food, drink, and exercise play a big part as well

[Chelle_ in reply to carllovatt]

Well I never knew that - I will look at thing and see what I can adjust!!

Hope you and your wife are ok!

[Hidden]

one of the best things for making you move is good old strawberries fantastic with all my children when little and even my dad who thru codine got blocked up good luck

[Chelle_ in reply to Hidden]

Ohh I like strawberries too! I might get my butt to the supermarket and make some purchases....

[Mum-of-three-to-be]

Have you tried grinding oats abd drinking them with lots of water,

Or a smoothie with psyllium husks,

Or chewing thoroughly a handful of prunes

Or freshly cooked long sweet red peppers

Or millet cooked like a porridge?

Teff flour and brown millet as well as cocoa are rich in fibre and all the above trap toxins in our bowel.

Avoid pasta, white rice, white bread, chocolate, biscuits and rubbish food

Hope this helps

[Chelle_ in reply to Mum-of-three-to-be]

Thank you - I shall have a go at some of these.

[Mum-of-three-to-be in reply to Chelle_]

You are very welcome. The brown ground millet I got from Germany. Not sure if can get it here other than on Amazon.

Good luck

[Hidden]

Hi Chelle

Are you taking any opioids? I had extreme constipation when I was on oxycodone.

K

[Chelle_ in reply to Hidden]

Nope no opioids - at least I don't think so! lol....I am on a fair bit of medication Like! lol

[Dldtx]

It’s rough I am 60 ml of lactose and twice daily 550mg of Xifaxan. Nothing tastes right stomach is confused I believe to go or stay, either way I haven’t lost or gained weight which I thought I trying to lose, but my hepatic encephalopathy is way better.

[Identity75]

Not normally a problem for me. Which I put down to either the ulcerative colitis or the amount of Haribo I eat. Lol

It’s probably a UC thing but caffeine, particularly tea always gets me running for the lav.

💩💩💩💩💩💩💩💩💩

[vulnerable]

I’m in 10 ml 4 times daily and they expect me to have opened my vowels at least 4 times a day - usually 4 times before I get out the door. Yes awful needing to be close to a loo - but the alternative of Hepatic encephalopathy !!!!!!