I have been through a bought of sepsis & suspended from the transplant list.
I have had what I thought where the relevent tests but have now been semi activated.Any ideas on what this means?
What the heck is semi activated? Your either on there or not.
Ideas welcome.
Please don't think you are no longer on the list. My understanding is that it's not a clear cut on or off decision. In an American nursing article, the author explains that there are 7 levels. Level 7 meaning status is inactive therefore, not optimally suited for transplant at this point in time. This scoring fluctuates as secondary complications are brought under control such as viruses, bleeding varices, infection ...Communication issues and mismatched understanding were highlighted as causing unecessary concern therefore, I would suggest that you ask your doctor or nurse to give you a clear explaination of how your status on the transplant list is calculated.
Encouragingly, the woman at the centre of the case study had her inactive status reassessed and eventually had her transplant.
ncbi.nlm.nih.gov/pmc/articl...
Thank you for the info.It's still pretty confusing but it has helped a lot.
Now I need something to take away the fear.
The fear won't go away, you have to try and accept the things you cannot change and change the things you can. Not easy but very necessary! Think positive, if an organ becomes available you are not automatically rejected, if its a match you will be considered.
I'll keep my fingers crossed for you.
They probably want you to fully recover before putting you back on the active list. No good being listed and called only to find that your body is not recovered enough for the major surgery.
Safer to delist and relist you later
Hope that won't be too long
Good luck
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