Hey.

[BethanyMiller]

Hey All,

My name is Bethany Miller I am 23 years old and live near Glasgow.

I am new here.

I have just been diagnosed with Intestinal failure liver disease (IFALD) resulting from the use of (TPN) when I was a baby as I was born three months premature and caught necrotising enterocolitis (NEC) bug, which resulted in me having a lot of bowel resections which culminated in me having the condition known as short bowel syndrome (SBS) which I have had my whole life.

I was given the website - British Liver Trust to go to for advice and to see if anyone else has my condition by my liver nurses. I have a always known that I had a liver issue of sorts and I have always had my liver scanned and bloods taken in children and now adult services. However, this is the first time there has actually been a name. I guess its all in the framing.

Thank you for your time.

Please feel free to get in touch if you have the condition or know anyone who does.

[witchiegirl]

Hello, Bethany. I am in Scotland too, and grew up in Glasgow. I have autoimmune liver disease (AILD) so on treatment for that. How are you at present? Are you waiting for a transplant or spoke other intervention?

[witchiegirl in reply to witchiegirl]

That should say some not spoke. My keyboard has a mind of its own today, has randomly changed to a German one and I don't know why!

[BethanyMiller in reply to witchiegirl]

Hi witchiegirl,

I am well - 'touch wood, hairy woods the best". Just a bit amused. I have been taking full nutritional support in the form of tablets my whole life and actually my liver issue now a disease became second to my short bowel syndrome. My liver function tests just vary. At the moment I am just getting six monthly check e.g. bloods and liver scans and every two years having an endoscopy.

How are you?