Started azathoprine

Hi folks. I'm in need of a bit of advice please...

I started azathoprine 50mg last Thur which is only a week... since Sunday I've been very soar all over. Feels like the way you do with a flu... I'm eating and drinking ok. Just so soar, even to touch. Xx

[jojokarak]

How long ago did you have your transplant?

[Hidden in reply to jojokarak]

I haven't had one. I was diagnosed with AIH And have been on Pred' for the last 15months.

[Gaynorlowson]

Maybe you should go see your doctor. Maybe you are just adjusting to new medication. I was on it pre transplant for AIH and am on it post transplant and I havnt had that problem but everybody's differentx

[Hidden in reply to Gaynorlowson]

Thanks. Yes I've got weekly bloods tomorrow. So will try and get an appointment too..... I've not taken any pain relief in over a year... should I take some paracetamol? Thanks xx

[Gaynorlowson in reply to Hidden]

Should be ok to take paracetamol I did in hospital when I was in pain , as long as you do not take more than the recommended dose .

[Hidden in reply to Gaynorlowson]

Will give it another hour or so and see how I go. Thanks xx

[AyrshireK]

Aza doens't suit some people and they have a bad reaction to it and have to be put on alternative immune suppressants.

I see you are already on the Facebook group at :- facebook.com/groups/AIHorgU... & receiving some advice there.

My hubby has cirrhosis due to AIH but isn't on an immune suppressant because his AIH isn't active.

Katie

[smc555]

I started Azathioprine the end of June last year after being diagnosed with AIH. They started me on 60 mg of Prednisone first, then a few weeks later added 50mg of Azathioprine. I never did feel sore but have experienced the easy to bleed and bruising problems on my arms; also, hair loss, although that has finally slowed down. I take lots of supplements now that I never took before: Vit E, Magnesium, Calcium, Vit D-3, Biotin and B complex. I make sure I eat a healthy anti-inflammatory diet, too. Gluten-free, hardly any sugar, no processed foods, no dairy, no soy, mostly stay away from Nightshade family and eat organic fruits and veggies. I don't know if this helps or not but I figure it doesn't hurt. I have also continued to work outside as a Permaculture gardener. I am now on 10 mg of Prednisone and 75mg of Azathioprine.

[Hidden in reply to smc555]

So glad your doing well. I too believe in looking after our bodies and using supplements. Also exercising! Just at the mainute it's tough with how soar I am. Feels kinda like a flu... Hopefully it will pass soon.. keep up the good work. Thanks xx

[smc555 in reply to Hidden]

I did have some nausea symptoms when I first started taking Azathioprine. After reading posts on this forum, I started taking it after dinner in the evening. Took the Prednisone after breakfast. I felt a lot better after that small change.

[Hidden in reply to smc555]

Yes I've just started to do the same. Thanks xx

[Hidden]

Dear Jacquie1975

We'd suggest you get in touch with the doctor/medical team who prescribed it for you just for reassurance/advice on whether this is ok. Everyone can react differently to new medications but for peace of mind it's worth checking.

Best wishes

Carol

[Hidden in reply to Hidden]

Thanks BLTcarol... yeah been got Gp who've ran some bloods. Thinking it could be viral as my kids had sickness last week. Xx