I hate AIH

[Xena2017]

Is anyone else struggling to figure out why they continue to take these meds that keep us alive even though life doesn't seem very appealing?

There's nowhere to run.. there's no escaping this

[Brummi]

Hi, I'm sure we all sypathise with you. Of course you need to change your life styles a little, as for taking meds is a part of it, we all live in hope of there being a cure. Just be positive .

[Identity75]

Stay strong Xena. I think we have all had moments of despair or hatred for what we are going through. I've had moments when I just get so fed up taking a few pills every morning and evening. Such a little thing, I don't have trouble taking pills like some people might, but just constantly having to take pills can be enough to bring you down. Take enjoyment from the things that you can still do. Find support and comfort in your nearest and dearest. Don't bottle it up. Have some "me" time and do something every now and then just for you.

[LAJ123]

Xena, You are right and its good that you felt able to post.

For the majority of the population, staying alive comes naturally, but we have to actively maintain life each and every day.

So its natural to focus more than normal on our own mortality.

When the 'depressive' episodes strike, we don't actually need to do anything. All we would need to do is 'nothing'

Added to this is the trauma of the disease and where appropriate, a transplant. It would be more surprising if we didn't have periods of intense reflection on our lives. After all, somebody died otherwise an organ would not have been available. Nobody ever said all of this was going to be easy.

Remember, when we are suffering from doubt and sadness, its not a weakness to admit this. We have support systems in place. The friends and family who went through the process with you, the transplant coordinators at your centre, your GP and local mental health services.

You are not alone and this British Liver Trust site is here to provide support for us all.

Jim

[nannyduck]

hi it must be horrible being in your situation but be thankful you can take tablets by the time mum was diagnosed it had gone to far to treat it is an awful thing to have and I feel for you but try to make the most of your life some life is better than no life as brummi said hopefully they will come up with a cure and it would be better to be around when they do so try to keep your chin up

[Hidden]

Hi Xena,

If you would like to talk please feel free to either email or call us here at The British Liver Trust. Here is the link to all our support servuces and contact details;

britishlivertrust.org.uk/fi...

As this forum shows, you are not alone,

Warm wishes,

Rebecca

[Gemma68]

Hi there. I don't post much on here but when I saw this thread I had to chime in. I understand where you are with this, I went through something similar a couple of years back. I actually stopped taking mine for three months because I was fed up with taking pills non-stop and I felt "fine'. Little did I know under the surface my levels were rising but I still "felt fine". It IS a struggle to keep taking pills day in and day out. The only thing I can say is that this feeling will pass and try to keep,your spirits up.

[Bolly]

You dont say which immunosuppressant you are on, but some dont suit everybody and there are alternatives. Talk to your specialist if you think the medication may be part of the problem and they may look at switching you to something else.

[clover90]

I have been taking Asa for 6 years and know I will continue to take them for the rest of my life. It is a price I am happy to pay so I can spend time with my family & friends. With one of my son's living in the US I have to stay positive otherwise I will not be visiting him or enjoying my time with him when he visits to the U.K.

Check with your consultant if you can try another tablet which will not make you feel so low. I have only last week given blood for research into AIH and perhaps with time things may change for us all xx

[Marcinm]

Hi xena2017!

I feel you! I'm down on my knees today as well yet I don't take any tablets that help me stay alive!

Look here healthunlocked.com/britishl...

DON'T GIVE UP 🤕

[sheri44]

I know exactly how you feel. I have been saying the same thing to myself recently. I don't know if it's because ive had problems and I'm not feeling great but I feel like I'm existing not living

[Phoenixv]

Hi I do understand my husband goes through the same thing but I must ask what tablets do you take to keep you going it might be that he does not get them but might be useful information for him

[Esmerelda62]

Hi Zenai I think we can all relate to the feelings you have- --some days are better than others !

I don't know your situation but I find getting out in the fresh air and having a walk and talk with a friend lightens that feeling of " what's the point " 😊

Would that be something you could try