Menu
Have an account? Log in
Health tools
    Health topics
    Search British Liver Trust
    British Liver Trust
    12,109 members • 5,983 posts

    Finally

    Had another fortnightly appointment at Leeds yesterday of all days had to be valentines day lol.

    At long bloody last consultants are happy with my progress and the fluid I have lost by myself had a scan and liver is fighting fit yeeeehaaaaa..... I am finally going to monthly appointments can't keep the smile off my face so fingers crossed it continues and I can celebrate 🎉 my 40th in 2 weeks time with no hiccups. Had to many special days ruined the last few years I just want this to be smooth and I got more hope than anything now!!

    Read more about...
    34 Replies
    oldest • newest

    Fantastic news i am so glad everything is finally going well for you. Stay strong and good luck in the future. X 😊

    3 likes
    Reply

    Great news. I'm still doing every 3 months over 2 years on. Hoping to get that reduced next time.

    4 likes
    Reply

    I've become monthly again after nearly 1.5 years of transplant. The consultants do not trust my GPs. I suppose we are lucky to get this treatment and service

    5 likes
    Reply

    For me it's a bit of a faff because I have to take the day off of work and train it to London, about three hours each way. But of course it's a small price to pay.

    2 likes
    Reply

    It is the same for me. I live about 50 minutes away for me. I've recently started taking the train myself because my husband's holidays were finishing. Tomorrow I have a longer day with an ultrasound and then the clinic so my husband will take me.

    How come you're still on 2 monthly appointments?

    I'm a bit disappointed that I'm still on 10mg of prograf. It is causing insomnia and not to mention the endless infections I've been getting.

    2 likes
    Reply

    No quarterly appointments. I'm not sure why they haven't been reduced to 6 monthly because I've not had any issues at all. I suspect it might be because I was on a medical trial so they want to keep an eye on things. Also I think due to the trial I've been able to drop prograf completely, and I'm on small doses of sirolimus instead, which I think is less toxic.

    1 like
    Reply

    That's very interesting that you're not on prograf. How much of the other anti rejection do you take? I do believe some of my gastric issues are from the high dose of prograf. I was on azathioprine too which sent my white blood count and red blood count into the low end quite dramatically!

    1 like
    Reply

    great news. I was there yesterday. Saw the surgeon then had to go to the other side of the hospital for a pre op. Very long day x

    1 like
    Reply

    oh im back in clinic for my liver 14th March. When are you there next? X

    1 like
    Reply

    I in on the 14th what time your appointment be lovely to meet up x

    1 like
    Reply

    9:45am. Always in early because I don't live close x

    2 likes
    Reply

    Mine 11am that's if transport gets me there on time lol

    1 like
    Reply

    hopefully I will see you there 😊

    1 like
    Reply

    Congratulations I'm so pleased for you and everything looks good, hope you have a great day for your birthday 👏🎉

    Love and best wishes cheli xxxxxx

    happy birthday

    4 likes
    Reply

    Hello all,

    jojokarak, always good to hear good news.

    Had my routine clinic on the 7th - no phone call, so all must be well. Next appointment is now 4 months which will be 15 months post op.

    By the way, Joe, you've inspired me. I'm now going to the gym twice a week and getting my bike fixed for the summer.

    Jim

    2 likes
    Reply

    That's great news sweetie, big celebrations for your 40th and very well deserved. So pleased yr liver is settling and doing well. ✨💕✨

    2 likes
    Reply

    brilliant news jojo!! I'm so happy for you. you must be over the moon. 😊.x

    4 likes
    Reply

    Yay!!! All sounds positive. Really good news.

    Time to put your liver woes behind you and celebrate your 40th with style.

    4 likes
    Reply

    Oh I will be doing lol 😁

    2 likes
    Reply

    I was at Leeds yesterday we could have sat next to each other and not known lol Glad it's good news 🙂

    3 likes
    Reply

    Lol that's true was you in bexley wing?

    1 like
    Reply

    Yes I was there about 10 o'clock x

    2 likes
    Reply

    I got in at 11am :-)

    1 like
    Reply

    I was still there then lol x

    2 likes
    Reply

    Lol hopefully next time can meet up and have a brew x.

    2 likes
    Reply

    sure that would be good xx

    2 likes
    Reply

    Do you use Facebook? Reason I ask is there is a Leeds liver support group on and it's fantastic

    2 likes
    Reply

    Lovely that you're doing well. Hope you manage to celebrate your birthday happily and healthily.

    3 likes
    Reply

    Thanks me too will make a lovely change x

    1 like
    Reply

    great news. we are wishing you well. xoxoxo love grace 🙋🏼

    2 likes
    Reply

    Yay!!!

    Glad to hear some good news about one of us!

    Cheering you on!

    Kimberly

    4 likes
    Reply

    Thank you hunni x hope your OK x

    2 likes
    Reply

    Dearest JoJo,

    For the first time in 5 years my husband was given his next appointment in 3 months as opposed to the weekly/fortnightly ones we are so used to!

    You are right - we have spent almost all important days and times in hospital and want to be able to actually celebrate :)

    Here's wishing you all the best hun!

    Pear

    2 likes
    Reply

    Thanks pear and over the moon for your husband it feels like a weight is lifted when the appointments have a longer space, makes you feel more confident about getting on and enjoying life after so long :-) x

    1 like
    Reply

    You may also like...

    Related Posts

    Popular Posts

    Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
    © 2018 All rights reserved.

    Company

    Product

    Support