Is anyone else on here from Mid-Wales. I was diagnosed with NASH in 2002 before mving to Wales. Since moving here in 2007 I have had sporadic follow-up by a gastro-enterologist in Hereford (who Powys have a contract with) who discharged me some years ago back to the care of my GP , but there are no actual Hepatologists in this area of the country. As I developed ascites last year, my GP referred me back to Hereford who sent me a letter saying my appointment would be over 40 weeks away. I saw a hepatologist privately in Birmingham who referred me on to Birmingham Liver clinic because of my cirrhosis and I'm soon to have my 2nd appointment with them. I have since been diagnosed with HE. I have now been sent an appointment with Hereford 'Hepatology department' (Even though they have no hepatologists just gastroenterologists with an 'interest' in Hep C) . Can I insist on continuing to have my care with Birmingham as I have been told I will evenually need a transplant or can they stop me going there & insist I go to see a lesser qualified man in Hereford. We dont have the normal choices in Wales as we do in England and this is worrying me awfully as I feel I have at last found someone who understands my medical problems.
Sorry for the rambling post but I really need some advice what to do.