As you know, I am now on the liver transplant waiting list (listed 3 weeks ago for the Royal Free - London).
Would really appreciate some advice or tips of food and drink advice for a) keeping healthy and b) for energy and c) my diet.
I have read a few old posts that lemon or lime in water is good (?)
I know I can't cleanse of detox the liver of toxins and my bilirubin is around 160-175 mmol but wondered if any food groups can help flush me through better (sorry to be blunt but my urine always really dark). I'm PBC diagnosed 10 years ago and now have bad scaring to liver.
Anything to help feel better than I do at the moment is worth a try.
Past month my sugar levels have been dropping. My son is type 1 diabetic so I'm fully aware of sugar readings and able to test my blood if I feel dizzy or unwell. Lowest it hit was 2.8!!!!
Spoke to my nurse contact at Royal London and liver co-ordinator as it was happening 2-3 times a day and making me feel really unwell.
I've been trying to eat little and often in between my 3 meals a day.
I'm sure some can relate that appetite is not always good though.
Over past 2 years, I have become dairy intolerant especially to milk, cheese, cream, soft cheeses and yoghurt. Maybe this will go away after my transplant (?)
I'm trying to stay as fit and healthy as I can for whenever its my time to have a transplant so any advice on jazzing up water or good fruits or veg or food to help.
I try not to eat much salt or sugar in my diet. Should I avoid anything else?
apart from that (and me waffling on to you all) I'm feeling pretty rough and now need a couple of early nights a week, had a couple of afternoon naps this week as I have been so tired and drained of energy 😩 I'm usually in my PJ's by 8pm each night - rock and roll eh!!!!!
Hope everyone is well and thank you for reading my update post and I look forward to hearing from you for some advice
Much love to you all. Nicki 💞