Hope all are still fighting on.
I feel we have been let down again by people just not doing there jobs right.
Firstly hubby saw the addiction nurse as part of assessment and saw her again in clinic last week. During the appointment she said that she wanted him to engage in an alcohol service and sent him a letter back in July. She then gave him a hard time for not going to any meetings yet. However we didn't even know, the letter wasn't even sent to us but his consultant only!! Claimed it was an admin error He is more than happy to go to AA but to be lectured on something you didn't even know about then blame admin is ridiculous.
Secondly and this is the worse and I'm livid to be honest.
As part of his assessment he was referred to a cardiologist for a stRess test and to check out a slight abnormality, this was all to take place in our local hospital. We were under the impression that they would contact the hospital directly and I have been chasing both hospitals for the last 5_-6 weeks. QE said that a referral hadn't happened yet and they would chase the consultant about 4 weeks ago. Been chasing every week with GP, QE and local hospital and hitting a brick wall. Found out last week that on the 14th July a letter asking our GP to refer him was typed. First we've heard of this!! Phoned surgery and a referral had Been made the day before. 6 weeks to action a urgent referral is ridiculous even for the NHS. I'm right in thinking that aren't I?
Thankfully hubby is in a good place at the moment gaing weight and stable but we all know the liver is tricky and things can change quickly. It's still not the point though!!
When you question what happened they 'handle you' with insensere appologises and excuse. It's ok for them they get to go home. Anyone like is with a chronic illness don't get to escape from it 24/7 for us.
I feel let down by everyone. QE, local hospital and especially our GP. I have explained the situation to her count less times I even chAnged GPs as the other one wasn't good and she knew this.
The consultants who screwed up his original referral by 6 months are also trying to take credit for his being assessed . Wasnt even them it was a combination of me, and the lovely Secretary of Doc Mutimer the begining of this year.
Another delay by incompetence it's a life threatening condition and I feel just isn't taken seriously enough. The side affects alone can be a full time job and I think I've been lucky compared to some of the rest of you guys.
Sick of being 'handled' and just want people to do there jobs right, not much to ask right!!!! In the meantime my poor boy suffers.
Sorry for rant but don't know what else to do. Going to complain to pals I think but Hubbys worried they will use it against him I'm not surprised he feels this way. We have seen some awful treatment.
Love to all