Hello, does anyone have any experience of PTLD? I had a liver transplant last Christmas and seemed to be making a good recovery. But then in July I started feeling unwell and rapidly deteriorated. I had abdominal pain, couldn't eat properly, night sweats and viral (EBV) symptoms. Within a couple of weeks I was diagnosed with PTLD (tumours in my stomach and small bowel). The dr seems quite optimistic that it can be treated successfully. My immuno suppression Meds were drastically cut, and I've had retuximab 4 times. Now they are going to wait 3 weeks and then do another scan to see if the condition has improved. I am feeling better in a lot of ways, but not well overall (I'm very weak and fatigued). If anyone else has been through this it would be great to hear from you. Thanks v much!
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.