So I have been unwell for about three years, described as abnormal but stable, I was diagnosed with two Cystadenoma (or as I call the two poxy bloody lumps) which in turn were restricting bile flow giving me fairly mild side effects (weight loss yeah, no more beer, boo) everything was ticking along quite nicely until I started to feel worst about six weeks ago. My bilirubin level has climbed from 50-60 to the latest 211, liver function has started to decline, my most resent imaging showed little to no change physical of the cysts themselves but something has changed. As you can image at bilirubin level of 211 I get some fairly funny looks, my under coat is nearly number yellow! I'm just taking it really steady at the moment, I'm awaiting my pre assessment tests, which Kings are pushing through this week as they want to list me at priority level for liver transplant. So really just saying hi.
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