Budd chiari syndrome

[Easterngirl64]

Hi I'm am a 52 year old female that has Budd chiari syndrome I have joined this group to chat to people who have the same condition . I was diagnosed 5 years ago but still confused with it even after all these years so would be nice to find out if others feel like what I feel like on a day to day basis.

Look forward to chatting

[dckimberly]

Hi there!

First, I'm sorry no one has responded yet!

I, myself, do not have your condition. But I felt bad no one had answered yet. They may have not seen it. Can I ask, what is the specifics of your illness and how does it relate to the liver?

I've heard the name before, but nothing more.

I had chirossis but was transplanted last year.

If there is no one else n here with your illness, maybe we can try and educate others and or find a place where other pepole do have it!

I didn't want you to feel alone! This is a great group of folks who are really supportive. There have been a lot of posts recently, so it may have not been seen.

Cheering you on!

Kimberly

[Jahida]

Hello Easterngirl, so sorry about your diagnosis but hopefully there are other people on here with a similar experience.

I do not have this condition but I had a transplant just 14 months ago. I wasn't poorly long term. My liver failure was sudden and very quick hence the quick transplant.

Hopefully you find someone to talk to about similar symptoms but I am guessing they are liver disease symptoms? If you'd like to elaborate then there are plenty of us here to talk about our journey xxxx

[Hidden]

Hey there my name is Dominique I am a nineteen year old woman and I was diagnosed with Budd Chiari in 2015. I would love to hear about your experience. Xx

[Kazzb8]

Hello, my husband was diagnosed with budd chiari syndrome last April at age 42.