Hi all I am new to this and feel like i need to let some things out when it’s all bottled up as i ak still confused, has anybody here suffered from Budd chiari syndrome? I have recently had a tip’s procedure and currently on blood thinners which makes me feel so low as I was a very active person just wanted to see how others have felt as I am aware it’s a rare condition but Doctors consultants can not give me a answer to how i got this.
Budd chiari syndrome : Hi all I am new... - British Liver Trust
Budd chiari syndrome
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Nardiyaa
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The BLT has a very informative page about Budd Chiari which may be useful ro you at:- britishlivertrust.org.uk/in...
Katie
I have Budd Chiari and diagnosed 15 years ago after becoming very ill quickly. Had TIPS and on blood thinners. Live a fairly normal life other than hospital appointments and Having shunt unblocked. There’s a really good facebook group for Budd Chiari - it’s very rare. Have you found reason for your Budd Chiari?
mine is due to a dodgy jak2 gene - I have polythycaema Vera rubra which is a form of relatively benign blood cancer which causes overproduction of red blood cells and hence clots. Sure they’ll check all known causes. Are you under the care of a specialist liver centre?
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