OCS Liver REVIVE Trial: Hi, Has anyone... - British Liver Trust

British Liver Trust

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OCS Liver REVIVE Trial

h0b0 profile image
h0b0
10 Replies

Hi,

Has anyone heard, of the above please. ? We have received an invite to take part in this research & we're not really sure about it. xx

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h0b0
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10 Replies
RodeoJoe profile image
RodeoJoe

I just google it hra.nhs.uk/news/research-su...

It's actually something I've heard of before. There's always a risk and that's why they perform trials however there's also a risk to not being in the trial. As I understand it they would be able to take lower quality donar livers and make them a good enough quality for transplant. So this would increase the number of donar livers available to you for transplant.

I took part in a trial when I had my transplant. It gave me access to drugs that are not often used because of expense and I believe greatly helped in my recovery and continuation of low amounts of immunosuppressive drugs.

For the year I was on the trial I also had access to a consultant 24 hours by phone. And private consultations with the same consultant instead of the usual liver outpatient ones.

Another thing I received was regular complete health checks, checking for just about every disease and possible side effect. As the consultant said when you are on a trial you are "watched like a hawk".

h0b0 profile image
h0b0 in reply toRodeoJoe

Thanks for taking time to reply. Guess we'll discuss it with consultant tomorrow.xx

BigSpuds profile image
BigSpuds

I'd like to go on trial for this. Anyone know how to get an invite? Anyone got a plus one.(snigger)

h0b0 profile image
h0b0 in reply toBigSpuds

We just got an invite in the post after going on the list. We are listed with St James Leeds.xx

BigSpuds profile image
BigSpuds

Thanks. I'm in Birkenhead so I'll try and register with Liverpool.

Ta

Jill

h0b0 profile image
h0b0

We also actually signed for the trial today.

RodeoJoe profile image
RodeoJoe in reply toh0b0

What convinced you?

h0b0 profile image
h0b0 in reply toRodeoJoe

Just the chance of more availability. Apparently the apparatus keeps the livers in better condition but if not successful then the liver is transferred to the usual "cool box". Also we were told that it has been successfully trialled 4 times already.

RodeoJoe profile image
RodeoJoe in reply toh0b0

uhb.nhs.uk/news/worlds-firs...

Are you at St James hospital?

h0b0 profile image
h0b0 in reply toRodeoJoe

yes.xx

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