Do you have HCC?: The  British Liver... - British Liver Trust

British Liver Trust

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Do you have HCC?

VanessaH profile image
8 Replies

The  British Liver Trust is delighted that the National Institute for Health and Care Excellence (NICE) has today accepted evidence on behalf of patients and has agreed to the use SIR-Spheres® Y-90 resin microspheres as a new treatment  alternative to existing therapy for patients with inoperable primary liver cancer (hepatocellular carcinoma or HCC). We are getting a number of media calls on this and if you have HCC and would be willing to speak about your experience please email me asap Vanessa.hebditch@britishlivertrust.org.uk or call 01425 481320. At the moment we particularly need someone from Leicester and Nottinghamshire

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VanessaH
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Bolly profile image
Bolly

Glad to read this.  I follow a blog of a lady in the US who treated with SIR-Spheres about 5 years ago and still has no evidence of recurrence or de novo.

I dont currently have HCC, had a successful resection 5+ years ago, so have experience of HCC but not of any existing therapy apart from surgery.

VanessaH profile image
VanessaH in reply toBolly

Thanks Bolly

Mama41 profile image
Mama41

I have Flhcc so I guess I'm not eligible for it? 

liveronmymind profile image
liveronmymind

Great News for those who still battling with HCC! - Wish it had been possible for my husband who had HCC but the specialist did not wish to do any treatment due to the decompensated liver. ..... and now it's too late.

VanessaH profile image
VanessaH in reply toliveronmymind

So sorry to hear this. Best wishes from the British Liver Trust. Vanessa

liveronmymind profile image
liveronmymind in reply toVanessaH

Greetings, and Thank You for your kind thoughts Vanessa and to The British Liver Trust who make this community forum and it's advice and member support possible. 

I am in nottinghamshire and want to get this. How do i? Can you help? Message me please if this nature of your request for persons to get in touch to get on this treatment.

Bolly profile image
Bolly

Bozzbeck email Vanessa asap as she said in her post Vanessa.hebditch@britishlivertrust.org.uk or call 01425 481320. 

Or read the document here: nice.org.uk/advice/mib63

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