Hello lovely BLT people.
I've had a pretty rough night, mostly anxiety and feel like I'm on the rollercoaster again.
I met the registrar yesterday who confirmed that my liver is Cirrohtic... I had a fibro scan of 16.6kpa last year and after the last specialist appt had told me it was inconclusive.
I guess I knew, but was feeling pretty good and sleeping well and walking. No nasty symptoms yet.
I asked about Harvoni as it is the medication I want but have to wait to be put on a drug trial... In the next few months.. Harvoni is not funded here, so it will not be Harvoni. It all kinda sucks because my job is pretty full on and I have a massive work plan this year, I've been so excited to tackle. (. I set up recycled designer boutiques for women's refuge.. anyway...)
Just sucks to have this news on xmas eve here. I needed to be away for work suddenly so I rescheduled and they fit me in.
I know it's not the end of the road, and reading all of your stories of bravery, heartache, triumphs, and challenges for yourselves and for your loved ones has made me stronger and more informed about the pathology of the liver, and what that all means.
The hardest thing is not having ay idea what this next part might be like. It's weird because yesterday I wasn't as emotional but the news woke me up last night... Crying a couple of times.
Hug yourselves, look after yourselves, and thank you from this kiwi who you have all helped immeasurably,
Love and light for a safe and happy holiday season,