Hi, posted 2 weeks ago about being taken into hospital as my stomach had gone rock hard and it turned out not to be ascities but 4 litres of urine had backflowed up into my abdo. I am a cirhossis sufferer. The same happened last night, but thanks to a kind out of hours doctor and my next door neighbour being a chaperone I had 3 litres of urine drained by catheter and he has left me with a bag attached to my leg for the night. He and next door saved me having an ambulance and a stay in hospital. Again, he automatically thought ascities until I told him I have just had the same experience 2 weeks ago and I have just had a doppler scan, and that there was no abdo fluid detected. Has anyone else suffered with this bladder retention problem. I take duiretics but can go days without wanting to pass urine. I was told its dangerous when the urine goes upwards as it can damage your kidneys. Thanks for listening as I am getting tired of this happening, Draining as we speak - too much information!
julie
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jules45
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No not too much information, more like you poor thing, sounds like hell. I have never heard of that so can't help except to say I had 5 years of sheer torture before I got a liver transplant and it sounds to me like you need one. Have you tried to get on the list?
While you wait for your urologist appt it might be worth contacting same GP whenever you have not passed urine for, say 4-6 hours as most people probably go at least 4 times a day. It is possible to be taught to self catheterise. I would not wait "days" of not wanting to pass urine because of the kidney damage risk.
Hi Bolly, thank you for your message. The district nurse told me when she came today that a continence nurse is going to come and see me and teach me to self catheterise. I hope the urology referral comes quicker.
Hope the GP is sorting you an urgent referral with the Urologogist. You probably need to see a Nephrologist too. (Kidney Specialist). I don't suffer with the symptoms you have, but have undergone appointments with both, as I have blood and protein in my urine. Basically, the Specialist feel it is all connected to my liver and are monitoring me 6 monthly. All the best to you. And fingers crossed for a speedy appointment
Thank you for your message. District nurse came today and sorted out the correct bag and an overnight one and from tomorrow with the new bag Ive got I will be able to dress and go out if I want. I hope the urology referral doesnt take too long as I cannot continue like this. Im just so grateful to the out of hours GP who saved me a long journey to hospital and taking up a bed. Feel a bit sorry for myself today but much more comfortable.
Which diuretic are you taking? I believe a side effect of Furosemide is an inability to pass urine, although I think you still want to go. I hope it all improves.
Hi, I take furosimide 40mg and spironolactane 50mg and have been on them for 5 years. I stopped taking spironolactane for a week and didnt have any problems apart from fluid building up on my chest so started them again.
Perhaps a diuretic review is needed. I can only wait to see what the urologist says when I get an appointment.
Hi, I am thankful to know this could happen to me. I will be careful and not assume some of my fluid is only about ascites. I do urinate plenty and I cannot take diuretics as I have low serum sodium. I often wonder how my kidneys are holding up. Its astonishing the problems we deal with in the progression of this disease. Aloha
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Help and advice for mum
Fairly new to living with cirrhosis...
I'm scared :(
