Hepatic encephalopathy: Hi everyone If... - British Liver Trust

British Liver Trust

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Hepatic encephalopathy

3 Replies

Hi everyone

If anyone has had experience of Hepatic encephalopathy (either as caring for someone with it or suffering from it themselves) then please can you help by taking a couple of minutes to complete a short survey.

Please visit:

tickbox.net/uc/survey_mod/8...

Thank you very much.

3 Replies
CaptA profile image
CaptA

It can come on early.

I experienced hepatic encephalopathy with few other symptoms before I was even diagnosed with liver disease. When finally saw a doctor for fatigue the blood tests came back extremely high for ALT and AST (my MELD figured at 25). I was started on drug therapy and lactulose. Gradually the blood tests moved to normal and I've got my brain back. It was frightening to be losing intelligence, performing poorly at work, unable to cope with computer glitches, etc. It is like being reborn to have myself back. Don't go into denial about brain function impediment. Get treatment ASAP

(I live in the USA so could not complete the survey.)

BLTHollyDawson profile image
BLTHollyDawsonVolunteer

Good Afternoon CaptA,

Thank you for your comment below, we would still be appreciated it if you could complete the survey. We are interested in every patient’s experience - no matter where they live and would value the insight to compare the UK's services.

Kind regards

Sandy

I cannot do the survey, as it tells me it is no longer being taken. I live in U.S. as well. Does this have something to do with not "staging survey anymore"?

I have A LOT of personal information to share about HCV AND HYPOTHROIDISM, have found nowhere. U

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