Hi everyone, first time in an online forum!! I have polycystic kidney disease which also caused me to develop a polycystic liver. My liver started to produce multiple cysts which caused my liver to push up my diaphragm, pushed up my lung on one side and had grown down to my hips, pressed on my stomach and I looked pregnant.
Anyway went through the assessment at Birmingham's Queen Elizabeth and ended up on the list in March this year. I was so very lucky because I was only on the list for two weeks and the call came at 22:30 on a Monday night (I think my blood group of A and my size, I am really petite, helped). As someone else said I was oddly very calm and the operation went very well.
It has been 6 months since the transplant and I am still not back at work, suffering back and joint pain, the wound site is still sore and I have just been diagnosed with osteoporosis.
I would be really interested to hear from other transplant patients as to the issues they had after their transplant and whether they went back to work.