Assessment update


My husband went in for his 1st assessment - stayed in hospital for a week - back yesterday. He had loads of tests, they call it an MOT - as I suppose it is when you have everything checked out: heart, lungs, kidneys etc...

We were told mid week that he was more than likely to be listed for transplant. We were told today that he isn't going to be listed :(

He will be put on Refaximin for Hepatic Enca.... (the brain thingy). Then assessed every 6 weeks. Just had lots of ups and downs this week...

Will update on how he gets on...


3 Replies

  • Hello I hope everything works out for your husband. I can understand how your feeling. Did they tell you why he can't have the transplant? Please don't give up hope. xx

  • Hello,

    They say he needs to take refaximin to sort out the toxins in his brain - they say that he will be reviewed in 6 weeks, I suppose it's a waiting game... When your liver is on a timer - not great:(

    Thank you for your kind words...

  • Day 3 refaximin: sleeping better, stopped non stop blabbering - but it comes in bursts - this can then go on for ages:) Seems to be taking meds with less of a battle (usually refuses point blank)

    Cardiologist has given all clear for his heart:)

    I will update on how the med is working as we go along. It isn't readily available - very expensive to prescribe - hopefully be able to share how he is doing on it:)

    Off to the smoking clinic - got to give up ciggies:)

    Pear shaped:)

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