Chiari Malformation

[Heather29487]

Hi all I have been diagnosed with chiari Malformation and am in severe pain on an almost daily basis. I am really suffering today with pain in my neck head back legs and arms as well as spasms shooting up my back into my head. Any advice please much appreciated.

[SandraMarric]

I'm so sorry Heather but I know nothing about the condition and can't therefore comment. Perhaps someone else on the forum is better informed and will be along to give you some advice.

I hope that you get everything sorted out.

Best wishes, Sandra

[HilaryKnight]

Hi Heather29487. My son has Chiari malformation. He’s 23 & we only found out in June. He has just had the decompression surgery to try to relieve the pressure on the brain which has caused him to have a lot of symptoms including bad headaches. The Ann Conroy Trust have a lot of helpful info on their website & a very helpful Helpline that you can ring. Hope this helps though I see your post was 6 months ago.