Prolactinoma and high Prolactin - help with pituitary issue affecting fertility

After 6 months coming off BC and no sign off my period Dr sent me for blood test and my prolactin is in the 1200s. Few other results out Inc androgen and testosterone but LH and FSH ok albeit on the low side. Been distraught since thinking PCOS and was getting my head around the potential of having that and TTC taking a bit longer Went to my GP today and he thinks I have a prolactinoma. My bloods do not indicate pcos. He explained it very well and said I will need to be looked at by an endocrinologist and with an MRI. Completely freaked out. Joked that have to wait ages for referral and he said not for something like this and booked me in for 2 weeks time. Glad it's quick but then what?

What can I expect? What sort of questions should I be asking and will I be getting asked? Apart from no period and TTC and high prolactin level i have not been getting some other the other symptoms that I have read up about. Guessing will be an initial chat but does anybody know how quick they are to get you in for MRI scan and the results.

So anxious to conceive and all I can see now is a long hold up and many sleepless nights

Anybody gone through this?

1 Reply

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  • Hi, I know this was posted a while ago and I hope your doing OK but I've been there and have a prolactinoma.

    I was diagnosed in 2013 with a prolactin level of 37,000 and a 2cm tumour. It took a while to get everything under control and get used to it all but I did get there and in 2015 I had my son. I belong to a good Facebook support group , prolactinoma support, and that's great for bouncing ideas, asking questions and feeling less alone in it all. Any time you need to talk I'm happy to listen and help if I can.

    Xx

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