Microscopic Colitis query : Hi all. I... - Bowel Disease Sup...

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Microscopic Colitis query

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Hi all. I hope it’s ok to post here without a diagnosis?

I am diagnosed coeliac (extremely careful gf diet) and bile acid malabsorption (diagnosed by response to meds not sehcat scan). I continue to have extreme diarrhoea regularly which leaves me exhausted, feeling ill and losing weight. I also have good patches.

I also have autoimmune thyroid disease.

Just back from asking my gp if it was worth considering Microscopic Colitis - to which she replied “does lightening strike twice?” and had I tried peppermint capsules … I would laugh if I wasn’t so exhausted with it all.

Am I right in thinking that being coeliac increases my chances of this being an answer?

Thanks in advance

Edited to add: can anyone recommend a private gastro consultant in Exeter/West Country. I’ve never gone private before but am getting desperate. Please private message if not appropriate to post here. Thank you

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eliz45 profile image
eliz45

You are definitely correct in asking that question. I have celiac and also have microscopic colitis. Celiac disease is associated with it many other diseases, Especially other auto-immune diseases. I also have Sjogren's Syndrome which is auto-immune. So yes, lightning DOES strike twice and sometimes even more often. And colitis causes frequent water stools and you need to be careful not to get dehydrated. I see you have an auto-immune thyroid disease so it does make sense. They can prove it with a colonoscopy of your colon and some biopsies. You cannot see it during a colonoscopy. A sample has to be examined under a microscope. Google "diseases associated with celiac disease." It is a pretty big list. Good luck. Definitely find a doctor who will listen to you. Good luck.

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