Teriparatide

[Rooruby]

Hi I started daily injections of teriparatide Nov 24 so nearly 4 months. Up until now all has been going really well. However the last 4 days I have had the worst arm muscle pain really bad tbh I'm wondering if anyone else has had this side effect. thanks in advance

[Samosalover]

oh that is really bad luck. Could that pain be caused by something else? I started on teriparatide last June and so far absolutely fine. Fingers crossed you feel better very soon?

[Rooruby in reply to Samosalover]

I do have other health issues but don't think it's anything to do with them thank you

[Miki2016]

Ciao Rooruby, anche io sto facendo le iniezioni di teriparatide da quasi tre mesi è a parte al inizio che avevo qualche effetto indesiderato andava tt bene fino due giorni fa ho avuto e ho dolore alla spalla SN ,come te, speriamo che sia un effetto passeggero 🤞🤞🤞.

[Kaarina in reply to Miki2016]

DeepL Translate: Reply from Miki2016

Hi Rooruby, I too have been having teriparatide injections for almost three months now and apart from at the beginning that I had some side effects it was fine until two days ago I had and have pain in my SN shoulder,like you, hopefully it is a passing effect 🤞🤞🤞.

[Rooruby in reply to Kaarina]

Oh that is interesting. I have decided I'm continuing with my injection and see how it goes. I have started low dose pain meds fingers crossed this helps. I wish you a speedy recovery from your pain too I'll also update if things get worse x

[peasandtoms]

From what you’ve written can I ask if you are injecting in your arm? I’ve had no problems injecting by pinching flesh on my abdomen (I have plenty!) and injecting in the top.

[Rooruby in reply to peasandtoms]

No I inject in abdomen and thigh x

[DonsAreRed]

Sorry you’re in such pain.

I started teriparatide at almost the exact same time (Nov 2024) and haven’t experienced anything like this.

I’ve just had a look at the list of potential side effects and can’t see pain in the arm as being one of them. But, as I’m not a medical doctor, I think the old advice for something like this of taking pain relief, exercising gently and going to see the GP if it hasn’t improved in a week might be a strategy.

Worth a try?

[Rooruby in reply to DonsAreRed]

I gave been doing exercise with physio and I'm wondering if this is the issue maybe trying to run before I can walk as I was always so active before and ot taken into account muscle loss since spinal fracture etc.

[Mavary]

Hi! Maybe something else is going on. If I were you I would get it checked out. I took Terraparatide for two years with no side effects at all but it doesn’t mean someone else can take them the same. Do not just stop them though. All the good you’ve done can drop quickly.

[Rooruby in reply to Mavary]

No way am I stopping this lol I'm praying after 2 years ill get some positive results. I'm also supposed to start cholesterol meds but holding of them until my pain eases. Thanks

[SingSong89]

I'm going to be very interested in reading any responses you receive to your enquiry as Rheumatology want to put me on that which I have declined up to now.

[Rooruby in reply to SingSong89]

Don't be put off if you read other posts it has a very positive outcomes. Tbh I will not stop the injection and after doing my research I decided it was the best option for me. I was offered prolia but that was one I really did not want to take. Good luck

[Jemima48]

Hi, I've now been on teriparatide for 19 months and not had any pain like that. To have it in one arm also seems unlikely if it's a side effect. I'd suggest it's something else causing it.Good luck with the teriparatide and hope your arm stops aching soon.

[Rooruby in reply to Jemima48]

Hi thanks for your reply arm seems to have eased off tonight and just had my injection. I'm hoping it is some kind of muscle pain as I also have osteoarthritis as well as fibromyalgia. Onwards and upwards. Please let us know how your dexa scan goes at the end of your teriparatide injections👍

[Jemima48]

Glad about your arm. I'm afraid I won't have much to report as, because of metalwork in my spine, they can't take an accurate reading. They've gone by my hips before, but I can't see what use that will be as teriparatide is targeted mainly at the spine. Have pushed for bone marker tests but consultant rheumatologist extremely reluctant. So I just have to hope the teriparatide has worked!

[Rooruby in reply to Jemima48]

Hi me again it's called REMS scan maybe look into this x

[Jemima48 in reply to Rooruby]

That's really kind of you. I've already looked into this. Found a place in London which I contacted. They asked for details of my metalwork, which I sent, then nothing. Sent another mail asking if they didn't feel REMS would be helpful for me and, again, they haven't bothered to reply. There are very few places offering REMS in the UK and I presume the others would say (or not say!) the same. Very disappointing.I'm seeing my consultant tomorrow and will ask about peripheral measurements (wrist, foot). But, not having had them taken at the start of the treatment, they wouldn't show me the improvement anyway.

Like many on this site, feel very unsupported by my rheumatologist.

[Rooruby in reply to Jemima48]

I agree we are definitely not treated as we should be my consultant basically stared he would not see me anymore as I would no take what he suggested he then referred me to the osteoporosis nurse who is never at work so just left hanging. Good luck with your journey

[Jemima48 in reply to Rooruby]

You, too. It's terrible that if we don't follow the one-size-fits-all conveyor belt we are left to stew.All we can do is research as much as possible and continue to be proactive, even if we make ourselves a nuisance (I'm sure I am seen as one).

All the best.

[Rooruby in reply to Jemima48]

Lol you are spot on and I know I'm see as a nuisance but I really don't care lol

[Rooruby]

Somewhere on here there was mention of a new kind of scanner that gives much more precise results than standard dexa. Cannot remember name but will have a search. Good luck anyway x