More pain a few months after infusion

[Slotmachine33]

Hello i think I've posted on here before for the same thing I'm not sure, I have a yearly zoledronic acid infusion had the 2nd one end of August had horrible side effects again but went away, judt these few months later I'm in a lot 9f pain again, upper back, lower back , legs, basically nearly my whole body, I'm struggling to think weather this is down to the infusion because the same happened after the one I had last year ,even some of my bones hurt to put pressure on, I did ring the hospital last year to ask one of the nurses if they think the infusion has caused the pain to increase and they said no but it just seems a coincidence that a few months after both of them the pain has got worse,just wondered if anyone else has had anything like this, hope I haven't just repeated myself from when I posted about this last time ,thanks .

[Doodlereggie]

hi

I don’t personally think it is coincidence as I had exactly the same happen to me.after first infusion I could not lift my head off the pillow with severe neck pain I had never had before.this was 2 days after.i took naproxen,diclofenac,anything I could get my hands on and eventually the pain eased.they assured me it was nothing to do with infusion.so,had another one a year later and exactly the same happened on day 2!This time it did not ease and I had to go to hospital overnight to have steroid injection in my upper spine.I refused the following year,and so now have 6 monthly injection at g.p. of Denosamab,with no side effects.Do not have to travel to Hospital and no probs.Maybe ask if you can change to Denosamab if appropriate.I am 80 ,today actually,and never had a bone fracture,and my dexa scans show no more deterioration ,so,I think all good.let us know how you get on.x

[Slotmachine33 in reply to Doodlereggie]

Thank you for replying, my pain gets worse after a few months that's why there saying it's not the infusion but I can't help thinking it is,if it had been a couple of days after like yours they said it could be but not a few months I just don't know ,but I will see into that injection you said but will have to convince them first it is down to the infusion I think, thank you again and hope you have a happy birthday 🎂

[Craftycreator in reply to Slotmachine33]

Hi my friend who had her infusion early August is experiencing pains the same as you. It was her first infusion. She doesn’t know what to do to ease the pain. How long did it last after your first infusion?

Best wishes for a speedy resolution.

[Slotmachine33 in reply to Craftycreator]

Hello well because I have chronic pain anyway what it did was make it worse, my back ribs legs , I can't really remember how long it lasted but it was quite a few weeks then went back to my normal pain, how long after the infusion did her pain start x

[Craftycreator in reply to Slotmachine33]

Hi She had her infusion early August and had some pain issues which settled but then last week she really started to suffer with increasing pain and now struggling to cope with it.

[Slotmachine33 in reply to Craftycreator]

Yes so it's a few months like me,I'm not sure what to do about it because the hospital wouldn't have it that it was the infusion but I'm sure it is, all I know is the pain is so much worse than I've had for 3 years .

[Craftycreator in reply to Slotmachine33]

She is in much the same position as you. Fingers crossed the issues resolve for you both. I suggested my friend ring the ROS nurses to get their advice. I had my first infusion at the end of July. I felt a bit unwell afterwards but the lasting symptom I seem to have is similar to menopausal hot sweats!

Best wishes and hope you feel better soon.

[Slotmachine33 in reply to Craftycreator]

Thank you, yes I rung ros and they said they haven't heard of it but that don't mean it wasn't, don't know how to fund out for sure ,anyway I do hope we both feel better soon and it wears off I doubt I will have anymore infusions ,good luck x