Boniva - experiences?

[pinkflamingo123]

Hi, I'm new here and diagnosed with osteoporosis.

T score -3.3. on my spine and -2.8 on my hips.

My endocrinologist prescribed Boniva - montly pill.

Any experiences with this medication? I would appreciate your advice. Thank you in advance!

[Spanky2019]

I did Boniva IV every 3 months for I think it was two years. Couldn't do Boniva pills due to gastro issues. Anyway my DEXA numbers got much worse, no improvement. Hip t score went from -2.9 to -3.3. Dr changed to yearly Reclast infusion. I've had 2 Reclast treatments. Will have DEXA in 2024 to see if there's improvement. Rheumatologist said next bone drug would be Prolia if results of Reclast are not satisfactory. I probably will not agree to Prolia if Reclast not successful. I've had a very complicated history with GCA /PMR & multiple medical issues. My Boniva story is only one of many. Just didn work for me. Best wishes to you!

[pinkflamingo123 in reply to Spanky2019]

Thank you for your reply. This will be my first osteoporosis drug and I hope it will work for me, along with the lifestyle changes, of course Sorry it didn't work for you thought. Did you experience any side effects?

[Spanky2019 in reply to pinkflamingo123]

No side effects from Boniva or Reclast. Big decision to go on any of these drugs. Hope all works out for you.

[pinkflamingo123 in reply to Spanky2019]

Big decision to go on any of these drugs

I have to admit, reading this scared me a bit...

[Ferr1005]

I too just got diagnosed. T score in spine is -3.1. I have been prescribed Tymlos. Start next week. Having a very difficult time with this diagnosis.

[pinkflamingo123 in reply to Ferr1005]

Actually, my diagnosis is more than a year old, I have tried avoiding meds and taking supplements, increasing physical activity and eating more nutritious food, but the T-score got worse 🙁 Now I'm going to try Boniva and see if it improves my T-score.

As far as I know, Tymlos is a different type of drug, however I haven't been offered that. Nevertheless, I know how difficult and confusing all this can get... I hope that Tymlos works for you. Good luck!