Thought it best to get this off my chest and share asap. I am aware we are all different, I've had Lupus SLE long enough to know that one so the following is not to shock, just to share with you.
Last November I was diagnosed with multiple vertebral fractures. My last Prolia injection was in January 2019. This was the fourth injection. Low back and jaw pain caused me to stop. I like you have read enough to know I should have been placed on another drug to protect me from these possible fractures. Sadly as usual my hospital was too busy telling me I was suffering from anxiety. If anxiety is to blame for severe lumbar pain then ok. I have no words! You know the rest.
I asked to be transferred to the nearer hospital that diagnosed the fractures and which already keeps an eye on my APS.
My first appointment went well in early January, the second was awful - wrote mid week telling you about that and a rather arrogant chap who seriously needed some help with his attitude as he mocked my recent horrors, restless legs no sleep for three weeks, stomach dumping and anal bleeding. So much for feeling on the mend. I'd saved his brain by being honest about my three weeks of fun. This man was a Consultant Rheumatologist. Allegedly.
This morning I received my recent dexa scan results from 6th January 2020. In 2016 my lumbar spine was -4. Whoops I thought, not good. Calcium supplements taken daily for 14yrs, ideal body weight, always walking and not lazy, eat good diet etc etc. It was a hard slap and hard to believe.
Todays letter has left me doing an impression of a goldfish. Lumbar spine -5.7.
Seeing GP next Tuesday and requesting urgent referral to a specialist orthopaedic unit. Might as well cut out the osteoporosis bit. I'm not laughing this time. I only have an ill health pension so not huge, sadly became ill before made it to a full service pension, but have had the brain to be saving and cautious with spending. Time I put that cash to a good cause.
Don't feel sorry for me. My partner as I have mentioned previously is my senior by some years and has survived years of cancer treatment, surgeries and now looks after me has taken the news badly. He butted in during that appointment this week when the doctor was rude and will stand by me. This isn't fair on him either.
Take care and have a good weekend,x