Prolia : Hello my name is Linda and I have... - Bone Health

Bone Health

4,708 members1,988 posts

Prolia

Lindy29 profile image
27 Replies

Hello my name is Linda and I have 5 injections of Prolia the 5th one was 2 months ago my tooth broke I am in no pain but should I wait till it is out of my system to have dental work like getting a tooth oulled?I also have been thinking of getting snap on dentures. I am looking for any suggestions or if any one else has had dental work while on Prolia. Thank you

27 Replies
HeronNS profile image
HeronNS

I hope you have been given another medication to help you avoid the possibility of rebound osteoporosis since discontinuing prolia.

Met00 profile image
Met00

I would talk to your dentist about that, but if you do decide to stop prolia, you need to take another medication as soon as the next prolia injection is due, to minimise the risk of rebound fractures. The most likely alternative would be a bisphosphonate, which carries its own risks with extractions.

Lindy29 profile image
Lindy29 in reply to Met00

Thank you for your response

Lindy,

I would recommend you wait as long as possible to get any teeth extracted, otherwise you run a risk of developing Osteonecrosis of the Jaw - Not anything you want! My condition is stable after almost two years, but no dentist can tell me if I will keep having this condition if I ever have another extraction, and no one wants to touch me with this risk . Once you develop this condition you should not start any Bisphosphonates because they also carry this risk. After you begin taking those drugs they tell you that you are hooked for life, both bone wise and money wise ...not in so many words.

Currently I am without any protection from fractures since I refused to take Forteo (Teriparatide) because it carries a slight risk of bone cancer, but does not cause the jaw problems.

Perhaps I'm being foolish, but it will be 2 years in April since my last injection. Am I scared? You betcha. I wish I had never taken Prolia. I'm having a second hip replacement in one month. I'll let this blog know how it goes.

Lindy29 profile image
Lindy29 in reply to angryandfrustrated

Thank you for your response scary prayers sent your way. I have been taking it for 2 and a half years. My dad is 73 and just had his second dose I am wondering what he should do he did take one for osteoporosis that started with a F can not remember the name. His sister had some different kinds of cancer and never took any osteoporosis medications that I know of .She was cancer free for years then developed bone cancer in her hip.

Hi I have not taken Prolia but a friend did and her teeth which were gorgeous suddenly started to get loose !

they said to her it had nothing to do with the Prolia but she knows it did the doctors protect each other and the drugs are their big money so of course they wont squeel on each other. so that is lwhat I heard on that drug- it wil ruin your teeth

JandoraKyani profile image
JandoraKyani in reply to

Hi applehead7, with everything that I've come across over the last week, you're supposed to have a dental check before being given it. My GP didn't even ask if I had any pre-existing dental issues (such as gum disease, which I did) and at my last visit to the dentist was informed that all of my back teeth are loose. This result recommends "A routine oral exam should be performed by the prescriber prior to initiation of Prolia treatment." rxlist.com/prolia-drug.htm#...

in reply to JandoraKyani

this is horrible . so now you might loose all your teeth?!

Stay away from this and other so called osteoporosis drugs they are dangerous. Go natural concentrate on foods and exercise

I will pass this information on to anyone that asks me what I know of prolia- people need to be warned

ImmunePoison profile image
ImmunePoison

Yes. I had one shot of Prolia 3 years ago and have regretted it ever since. It has altered my whole immune system. But, there were two contraindications and I should never have gotten the shot, but my Dr. didn't know because the information was buried in 30 pages of Amgen (the manufacturer) literaturature. It says do not take Prolia if you have had any bowel surgery, or if you have bad allergies, or altered immune system. I have both problems.

After one year I had a bridge put in on the right side of my upper teeth. I began having constant underlying pain in the nerve there because they had had to pull one of the teeth. Then 6 months later I had to have a root canal in the eye tooth in same area. It made the pain almost constant. Then 2 1/2 years after my one and only shot, a root canal had to be done on the very back tooth in that same row. After that, the whole upper right side began to ache full time as if I had a giant toothache. My young female dentist read up on Prolia (she came in half way through this) and said, no extractions forme, if at all possible. She felt like with all my problems, that I might develop Osteonecrosis of the Jaw (read up on that, please). My doctor and I tried a course of cortisone to see if the nerve was inflamed. It must have been because the entire nerve under there, calmed down and I didn't have any pain for 5 months. I cannot take Aleve or Motrin because of allergies. Now, though, I have the occasional day of pain in the same place. Hope it doesn't start hurting all over again. So yes, I would be cautious. And, if your dentist is internet savvy please have him/her do some research on Prolia. Many of them have never even heard of it and don't know they have to be very careful with extractions after Prolia.

Lindy29 profile image
Lindy29 in reply to ImmunePoison

Thank you very much

in reply to ImmunePoison

I read your post and everyone needs to read it so in other words the prolia can make you loose your jaw bone. I have heard that .

this drug needs to be yanked off the shelves! it is dangerous

my motto diet vitamins healthy foods exercise will make you feel and be better the md's have monopolized the health industry and it is fueled by dangerous drugs and greed

Posy-White profile image
Posy-White

Hello Lindy29,

If your last Prolia injection was only 2 months ago you still have a lot of it in your system. I have been on Prolia, I was lucky because it seemed to suit me, and I didn't need any major dental work done. I was advised that if I did need any work done to wait until the 5-6 month time, end of one injection time and before the next. At the time I talked to my dentist and he felt if I did need any 'real work' doing it should be done at the hospital, he seemed to be aware of the issues of getting Osteonecrosis of the jaw.

Reading all the problems it is possible to have with dental work and Prolia I can understand your concern about managing this, only sorry so far no one can suggest a good plan, what has your Consultant advised? Is it worth trying to get a phone appointment with the Consultant and see what they feel is a 'safe plan'. If you are in the UK can I suggest you phone the one of the Specialist Nurses at ROS - (Royal Osteoporosis Society ) 0808 800 0035.

Good Luck only sorry not to share anything more helpful.

Posy White

Lindy29 profile image
Lindy29 in reply to Posy-White

Thank you very much for your advice I am going to wait my tooth does not hurt

Posy-White profile image
Posy-White

Glad you tooth isn't hurting.

I may be advised to go back on Prolia (on Forsteo daily injections at the moment but finish the course in June). I thought I'd start doing research especially about the dental care, if I find anything worth sharing I'll let you know. It just doesn't seem to be a good option for Prolia users to hang on and hope not to need dental work!

Posy White

Lindy29 profile image
Lindy29 in reply to Posy-White

Thank you very much

in reply to Posy-White

you wont need dental work if you take Prolia because your jaw can

fall off!! osteonecrosis of the jawbone - that means your jaw bone dies

NIGHTMARE. then what?? a series of surgeries to put a plastic jaw on yor skull?? Please- try a natural approach to this bone loss if you take the prolia you are trading one problem to get a hundred worse problems

mollysuki profile image
mollysuki

Way to go people! Talk about putting the fear of God to someone! I’m on Denosumab have had no side effects. Yes I’ve had tooth extractions but not because of Denosumab but I have rubbish teeth and gums as do my siblings. My dentist is well aware of the medication and has asked advice from my consultant. He said to wait two weeks after the injection. My other extraction was near to the end of the six months. There can be problems with the healing process, but this is rare, mine have healed well with no problems. My dentist follows up with a X-ray after one month and other after 3 months.

It never seizes to amaze me how unsupportive people are on this site. Thousands of people take this medication not just in the UK but all over the world without any problems. Yes there can be side effects as there is with any medication but these are rare.

Please phone the specialist nurses on the free helpline at the Royal Osteoporosis Society. Hopefully they’ll be able to reassure you unlike the scaremongers on this site! They should rename this site Anti Meds Group.

in reply to mollysuki

hey molly so you do not think its smart to warn these women of the fact that they may loose their jaw bones? that is CRIMINAL - if I see a car coming up behind you ready to run you down and I say nothing to warn you .... then I am a rotten person and criminal . They need information to decide if they want to run the risk. Not BS

mollysuki profile image
mollysuki in reply to

All of that information is in the PIL. But as I’ve already said it’s rare. The original poster wanted/needed support and advice and I just feel she/he wasn’t getting it.

I can not believe this person molly who takes issue at the fact that people are being informed about something that doctors dispense like candy and it is sooooo dangerous - she Molly suki does not want us to tell people what can happen ?? I think she works for the drug company!

how nasty can you be? Molly?

mollysuki profile image
mollysuki in reply to

I do not work for anyone. After several spinal fractures I’ve been unable to work.

in reply to mollysuki

Hi Molly I have spoken to many women who have had horrible side effects from Prolia In fact I dont think I have ever spoken to anybody who did Not have bad side effects so I am trying to warn people before they destroy their lives with this drug , yeah for YOU that you had no side effects yet however down the line you may get some bad stuff happening to you its Russian Roulette only worse

Posy-White profile image
Posy-White

We all have to make choices - I can not absorb or tolerate foods and oral medication like others.

I knew from teenage that I was likely to develop Osteoporosis. I've made the best choses for me and with a physically active life style managed well, but did choose to use the only medication open to me once the Osteoporosis started to really deteriorate. I was offered Prolia as unlike most medication I was able to take it. I had it for five years, only coming off it got rebound fractures which have left me disabled and unable to work or do any of my outdoor physical hobbies.

I don't regret the choice I made, I, my family and doctors throught it the best for me at the time.

I can understand the strong feeling if medication makes you ill / damages you - the foods most of you eat can kill me.

I would like to respect the views of others and by sharing our experinces we can make more informed choices.

Posy White

mollysuki profile image
mollysuki in reply to Posy-White

Agree with you wholeheartedly. I respect the choices that people make and would like the same courtesy from those that disagree with my choices.

Posy-White profile image
Posy-White

Hello Badsideeffects

I'm sorry if I don't make sense, but part of being in this forum is sharing feelings and experiences about our bone health/issues. I'm an ordinary person who might well be miss informed.

Your experiences on Prolia are horrifying and I wish you luck in finding others who have also sufferred by having Prolia so that you can get a law suit underway.

I also was started on Prolia when it was thought to be a wonder drug, partly coming out of the International Space Station research done in space and hailed because as such there seemed to be nothing else in this class. Unlike you (and a good many others) I like Lindy29 and Mollysuki didn't have the these horrifying Prolia issues, but we still may have got concerns and /or want to learn from others.

I have been food intolerant basically since birth it got worse as a teenager and that’s when I was told OS is on the cards because I could not absorb enough bone healthy foods / supplements. I have a pre-digested powder food, after months of trying medication under hospital conditions being given less than a drop at a time this and suitable vitamin supplements where found and cover my basic needs.

I read the tips and writing of others when they are able to improve they bone strength by excises, diet and supplements and are managing wonderfully. But if I’m honest I sometime start to skip read or even avoid their comments as I know I simply cannot go down that route but other times I can read them and I hope I learn a bit more …… so with luck the things I write will make sense!

Why not skip read the people who get up your nose (like me?) but by using this and I believe Facebook you’ll also find people in a like situation / have needs like yours.

Posy-white

mollysuki profile image
mollysuki

I’m very sorry to hear that it destroyed your life. But for me it saved my life.

in reply to mollysuki

and Molly I work doing volunteer work for women who have osteoporosis and so I hear Horror stories on Prolia - never heard a good thing about Prolia Only bad stories of teeth falling out nausea pain headachs necrosis of the jaw bone cancers growths in your throat et etc so I let women know that they are going to be in for a wild ride with this drug and most others stink too . Why is this even allowed to be given to people they know what is going on .... greed

You may also like...