Severe Osteoporosis

[Curls443]

Hi I am 54 living in UK, nasty accident last year , fractured femur, I have 2 screws inserted. Type of fracture may stop blood supply resulting bone to die off, means would need a hip replacement, a 2 year wait to see if that happens. So far healing really well, Two weeks ago Dexa scan revealed severe osteoporosis, hospital doctor immediately arranging tests to see if my kidney' s etc strong enough for Zeledronic acid, I was told my spine could collapse, contacted my new GP to discuss, only told again my spine could collapse, after a crash course of research have decided I am going to take charge of my bones and dramatically change my life, bone friendly diet, supplements, stop drinking wine , coffee, sugar. Develop my own exercise regime, my ambition is to reverse my bone density by at least 15%, If anyone has had success reversing osteoporosis I would welcome any advice

[Met00]

Sorry to hear about your bad accident/injury and now an osteoporosis diagnosis, but good for you for such a positive approach! Were you told your t-scores and fracture risk? Do they believe your fracture was due to osteoporosis, or could it have happened to someone without osteoporosis? Regardless of this, diet, exercise and supplements are very important. Safe exercise with weights has been shown to build bone (Australian studies) even in those who have previously fractured, but under qualified supervision to avoid injury. Do your supplements include high dose D3 (depending on your blood level), magnesium, K2 (MK4 or MK7) and boron? D3 absorbs calcium from diet and magnesium and K2 help send it to the bones. Boron is supposed to help build bone too. I'm using a similar approach but won't know till my next DEXA scan in 2 years' time whether it's made any difference.

[Curls443 in reply to Met00]

Yes just started taking Calcium, D3 , K2,( MK7 ) and Magnesium, also decided to take B complex as I used to enjoy my wine. Using food to address boron at the moment, I think I need to study for a long time before I can understand everything, trying to buy organic but not cheap. I have requested another appointment with the hospital doctor to discuss things in more detail, it was not made clear to me whether it was in my hips or not as only my spine was discussed.

[Met00 in reply to Curls443]

If you're in the UK, you're entitled to see your DEXA scan results, which will give you your t-scores and fracture risk. You can then make up your own mind about your risk. My t-scores last summer were -3.6 (spine) and -2.5 (hip), having worsened in 3 1/2 years from -3.2 and -2.3. I was told 4 years ago that I was at severe risk of a spinal fracture, but so far that hasn't happened and I'm not taking meds. From what I've heard, it's quite common here in the UK for anyone with a t-score in the osteoporotic range to be told they're at severe risk of fracture, although the greatest determinant of fracture risk is if you've already had an osteoporotic fracture. Good luck with working it all out - it's quite overwhelming to start with, so much to take on board!

[Curls443 in reply to Met00]

Hi he told me my spine was - 4, no mention of my hip. I am going to be clearer with my questions next time, first visit was a bit of a blur.

[Jessie1234 in reply to Curls443]

You can just phone a secretary at your doctor’s surgery and request a print copy of you latest dexa scan results or any other results that might be of use. Dr Susan Brown’s blog on her website “Better Bones” has lots of interesting topics. The Nation Osteoporosis Society will shortly have new exercise programmes and recommendations availability online as well as having a free nurse helpline available.

[Curls443 in reply to Jessie1234]

Thank you for that, very useful

[DarcyMcginty]

I fractured my hip when age 54 and had 3 screws. I was diagnosed with osteoporosis with T scores of - 2.9 (hip) and - 3.2 (spine). I took Aledronic acid for 5 years and have been on Calceos continuously since diagnosis. I had a Dexa last year and my scores have improved to - 2.6 and - 2.8. I am having another dexa this year to decide if I need to go back on aledronic acid. I am a physio and exercise correctly. I am very happy with my management.

[Curls443 in reply to DarcyMcginty]

One more screw than me lol, Congratulations on increasing your bone density.

[DarcyMcginty in reply to Curls443]

Thanks. Good Luck to you. It’s a long haul and forever but worth it.

[Curls443 in reply to DarcyMcginty]

Thank you, good luck with your next Dexa results

[DarcyMcginty in reply to Curls443]

I will let you know the results

[Curls443 in reply to DarcyMcginty]

Yes, please do

[Walkingdogs in reply to DarcyMcginty]

Darcy did you have any side affects with the Alendronic acid? I’ve been on it five months and it seems ok so far. I had 2 spinal fractures last year and was told changing diet alone wouldn’t help. I had put off taking it for 8 years but am sorry I did now. I’d like to know what you think of it after taking for 5 years.

[DarcyMcginty in reply to Walkingdogs]

I had no problems at all. Followed the instructions to the letter. Used to take it first thing on a Saturday morning and set a timer for 30 mins. I then either walked around or sat very upright reading a book. It improved my spine scores traumatically. I’m sure you will be fine x

[Walkingdogs in reply to DarcyMcginty]

Many thanks, that’s good to hear. 🙂

[kcoman in reply to Walkingdogs]

Hi I have had no side effects, on my second spell on AA after bone density decreased when I stopped taking it. I have done research and cannot find evidence of significant increase without drugs

[Walkingdogs in reply to kcoman]

I have found the same. I think it all depends on how bad the osteoporosis is. If it’s caught earlier when it’s not to bad, diet and supplements maybe help. Mine had gone to far, but I also take calcium citrate d3 and k2. I also take plenty of bone building stuff in my diet. Ty for the reply

[Seacrab]

I wish I had positive advice to give ... hopefully our medical/research professionals will find those magic cures for our fragile bones. In the meantime, I STRONGLY dissuade PROLIA injections; the side affects are worse than the condition.

[lanzarote123 in reply to Seacrab]

I am in UK and agree I had 1 injection of Prolia in November and have suffered awful side effects since then I will not have another one tho my GP is saying my side effects are all coincidence and when I rang the OP nurse at the hospital to inform her of side effects and that I was having no more Prolia she was adamant that side effects are rare and I couldn't come off it?? I feel totally let down by GP and hospital I've been left with no information on how to come off safely no-one admits to side effects

😔

[Curls443 in reply to lanzarote123]

Well I am getting it from all sides choosing the natural path, including my daughter who is a nurse. I have not told hospital doctor yet only his secretary requesting a new appointment before I start any treatment, even though I have already made my mind up. Sorry to hear about your side effects .

[antiP2219 in reply to lanzarote123]

My research found, as I said above, that you can stop after one shot with no increased risk of fractures in the months after you have stopped. After two or more shots, risk increases significantly. l have had awful side effects for months from just one shot. Never again. Just check out pages at Mayo Clinic for Prolia. Awful!

[Curls443]

Thank you for your response, I am choosing the natural path.