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Bone Health
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HRT stories?

sweetsusie told me about HRT for osteoporosis sufferers (thank you @sweetsusie!!). I'm only 46 and I really think the standard first course of action (biphosonates) is potentially too much - or rather - the side effects could be devastating. I have a stressful job, busy leisure time, sporty, love travelling - that's all going to be wrecked if I get the bad potential side effects.

So far, I've not had a lengthy discussion with my specialist - I only said I was open to treatment on Friday last week - that is to come. Of course, she just mentioned biphosphonates & Prolia at this stage saying I should look into it and have a think about what I want to do.

I want to ask her about HRT - don't know if it's prescribed for OP treatment here in the Netherlands, but I'd like to speak to her with some experiences. I've done some research and I know that it IS prescribed for women my age who no longer mentstruate (I stopped about 20 years ago - hence OP now! - because my body fat % is too low, essentially).

So, experiences would be great, especially if your DEXA results showed improvement.

Thanks!

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Hi sheeniejay I had a hysterectomy day before I was 39 and I had one ovary removed, after two years I began getting menopause symptoms, was on HRT until late 50s in that time I had a dexa scan as my mum had fallen and broken her wrist, by then I had very slight osteopenia but I had been taken off HRT some years before I asked to go back on it they told me HRT protects the bones well known fact, alas in UK my doc refused to prescribe it again because of my age so I went around 6yrs with nothing until I asked for dexa found I now have osteoporosis and am taking alendronic acid I don't like it but no other options here really I wouldn't have prolia as its injected!!! Good luck x

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So because you're, presumably, in your sixties, the UK doctor won't prescribe it? Oh that's awful!! I have TOTALLY ruled out Prolia - I've read TOO much about it. The risk is too high! It's good to hear that HRT is indeed believed to protect bones. How's the alendronic acid going? I hope you're doing okay.

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Take a look at Save Our Bones website. There’s a lot of free information you might find useful. Also a bone health HU forum.

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Thanks - yes, I've been reading and speaking a lot to people on the bone forum - and thank goodness I did. I live in NL and could find nothing as good as NOS site or this site. If I hadn't found this site, I think I would have stayed naieve. I would never have thought about asking for HRT for sure. I'll check the Save our Bones site.

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If have taken hrt for years. Some doctors seem to think it’s a bad idea, and one doctor even wiped it off my prescription list causing terrible symptoms. My mum had osteoporosis, and th fact at 65 I only have osteopenia in one hip is down to the HRT over the years. I was first prescribed it by a private consultant, and I decided that if I ever had problems again , I would just pay to see a private consultant, and hopefully get better understanding. . Ps I had a hysterectomy , also Fallopian tubes, cervix and one ovary removed 4 years ago. Hope this helps.

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Thank you so much!! Yes, that helps a lot.

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Was diagnosed with osteoporosis. Then went on hrt. Had a dexa scan a couple of months ago. Told my bones are better than a woman in her thirties. That doctor however doesn't want me to continue hrt due to the bad press. My previous doctor had prescribed it and believed in it but she retired. I'm staying with on it. Called Evorel conti patches. Running round after my grandkids. WHO trials were badly flawed. My previous doctor said that in the future it will be found that we should all be on them. A woman on twitter in England said her doctor has a woman of 77 still on them. Says no reason to stop. That doctor is on the board of the British Menopause society.

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THANK YOU SO MUCH! I have an appointment with my bone specialist on Monday to discuss treatments. She knows already that I want HRT. I have amenorrhea but, I don't know if I am also perimenopausal. I asked my GP (I live in the Netherlands) and she said we could test to see if I'm going into menopause now (I'm 46), so, it seems it's possible to have amenorrhea and go into menopause.

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Hi. Just seen my bone specialist. She suggested the combined pill, instead of HRT, but I just read up on it and how it can WORSEN bone density! I want to go back to push for HRT. What treatment - brand, regime etc - are you taking? It will help to be able to give her specific details of one which has improved your DEXA scores. THANK YOU!!

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You are young so you'd be prescribed a different one to me. I'm on Evorel conti. Triptolene

would be suitable for you. I was prescribed that at about your age.

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THANK YOU!!!! I'll keep you posted.

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I knew a woman in her 80’s who was on hrt.

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Had the medics forgotten to take her off HRT or was she still suffering hot flushes ....

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Hi there, I was diagnosed with OP when I was 65yrs ... I refused medication and decided to self manage with supplements, good diet and exercise ... I fended off medication for 8 yrs and more or less maintained my bone density with only small deviations in T scores, until I was a passenger in a car accident, I fractured my sternum and had two compressed vertebrae. I couldn’t exercise for ages, then got pneumonia and exercise was again out on hold. As a consequence when I had my most recent DEXA scan it showed bone loss in both my spine and hips and my hospital consultant said it was time to think about medication. I refused bisphosonates including Prolia but after much heart searching and research I opted for Raloxifene ... I had read a great deal about side effects and I was very apprehensive, however I am now in week 3 and so far so good, I have had no side effects whatsoever, it is early days yet but I am feeling optimistic.

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Thanks Bev53-SB I read up about raloxifene too. It's about number 3 on my option list - above biphosphonates & Prolia (Prolia is not an option for me - sounds too awful & risky). Good to hear that, so far, you've not experienced any awful side effects.

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What are the options above Raloxifene for you? I am guessing HRT is one of them but at 73 my consultant didn’t think this was an option but you are much younger. Isn’t it just a mine field, I was offered Prolia because i had outright refused bisphosonates because of a difficult dental history, fears of ONJ and the fact I had a hiatus hernia ... but Prolia is still a bisphosonate with worse outcomes if it is withdrawn. I would have considered Strontium Ranelate but of course this is no longer available on the NHS. I found the NOS nurses very helpful when I was considering the pros and cons of each option.

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Yes, I rang the NOS nurses too and have researched everything, read studies etc HRT is my first option, teriparatide is my second choice (from indeed, a potential side effects mine field) because it seems to have the least awful potential side effects. There's no public health service here in the Netherlands. I know it is reimbursed by health insurance BUT I don't know, until I talk to my specialist, if it is only approved if the patient has tried the first line treatments (biphosphonates & Prolia) and responded badly. On any treatment, I'd double check with my specific insurer that they would reimburse the cost under my current policy. You often have to opt for certain brands too. Talking to everyone on this forum has been invaluable, though.

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Yes it does help being able to chat to others, good luck whatever you decide.

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Sheeniejay, I discovered I had osteoporosis in my spine, -2.5 dexa result, at 53 years of age after breaking an ankle falling on black ice, which is not a fragility fall. Ten years down the line I have had no more breaks despite refusing bisphosonates after reading stories from the US online as there was so little information in the UK then. With a lot of trepidation I went the exercise route and eventually improved my diet taking supplements Vitamin D3, K2 and boron and eating a banana daily for potassium. I have been doing Pilates for 16 years with a very experienced instructor; I walk regularly with a weighted vest including hills, do aerobics and lots of dancing including barn and ceile dancing involving plenty of hopping and stamping. I also did weight training for a year with a personal trainer being very careful with the type of exercise. I think if I were to do it again I’d take HRT but years ago I was scared of it too. As I get older I’m open to taking drugs if fractures occur with age. I refuse to get dexa scans as a doctor said to me...if you do and your score is bad we have to offer them and she told me I was doing all the right things. Anyway with reading up I gather that often it’s people with osteopenia who have fractures. Current thought is that it’s not just the score that counts; the quality or testile strength of your bone counts too. I found The Canadian Osteoporosis Society very useful for advice and The Better Bones website and blog plus melioguide.com. I have the book by Margaret Martin “Exercise for Better Bones,” a very doable, safe progressive weight training programme you can do at home that has lots of online support and advise from the author, an experienced Physical Therapist. I found the book by Lara Pizzorno “Your Bones; How you can have Strong Bones for Life - Naturally” useful. And of course the NOS advise is invaluable too. I’ve only discovered recently that my osteoporosis may be due to haemochromatosis ie, iron overload. Now to sort that! Sorry this is such a long post but I’m just pointing out that there are alternatives, including a route you could take alongside HRT. Don’t panic ( I did!). You are not going to break a bone immediately, You have time to think it through and make informed decisions.

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Thank you!!! I had a metatarsal stress fracture on my left foot (3rd bone) BUT I am a runner and had been training VERY hard for 2 events when it happened. Sadly, this has put my fracture risk from 1.6% to 3.6%. I know stress fractures are really common amongst runners - men get them too - but one specialist has made me obsessively terrified it will happen again very soon.It took a long time to heal but I refused a plaster and obviously, walking around, being active. Thank you for taking the time to write such an informed reply. It's also helpful because your diagnosis came only 7 years older than I am. I also read an article just this morning about how a particular probiotic has shown bone improvement in mice. They want to see if it has a positive effect in humans next.

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