Prolia: I noticed some posts absolutely... - Bone Health and O...

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Prolia

TommyJohn profile image
6 Replies

I noticed some posts absolutely trying to deter people from taking Prolia. I am on the 4th year of 6 monthly injections and have no side effects. I have had 4 fractures and since beginning treatment am happy to state that I haven't had anything go amiss :-)

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TommyJohn
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6 Replies

That's great, thanks for sharing Tommyjohn :)

Hedgehog-Lady profile image
Hedgehog-Lady

Thank you for sharing that TommyJohn. I am about to embark on treatment for my 8 fractures, it is reassuring to hear this.

Gigi71 profile image
Gigi71

I was only allowed 6 injections over a 3 year period, having been on Alendronate Acid for a number of years, I am back Alendronate acid again. I didn't have any side effects either, that I know of !

HeronNS profile image
HeronNS

Denosumab like the older bisphosphonates can also lead to atypical fractures after a few years. Not saying it will, just that it is by no means a benign medication. It works by poisoning the osteoclasts which also have a part to play in the immune system, as well as in normal bone remodelling. And as with the other bone meds you still have to eat well and exercise in order to provide the bones with what they need to keep healthy, so it's not a question of taking the meds and expecting them to do all the work - they are just part of a much bigger picture.

TommyJohn profile image
TommyJohn

I suppose I could elaborate more - Exercise ; (I use small dumbells and resistance machines) is vital. I use treadmill for 30 mins daily, swim twice a week, and use a weak level on the X trainer. I am a bit restricted in what I can use in the gym due to the "swollen belly" syndrome that comes with loss of height. Diet and "other" medication can be a problem - so be guided by your consultant/specialist.

I started treatment with Sachets of Protelos, graduated to 2 years of daily Forsteo (Forteo in the US) - People who don't get side effects are less likely to complain and write in forums - Which is perfectly natural :-)

HeronNS profile image
HeronNS

As people are apparently still reading this older post it's as well to mention the recent publicity regarding rebound osteoporosis caused by Prolia when treatment is discontinued. A disappointing finding as Prolia is effective at "building" bone. Too bad the rebound can cause a condition worse than the original,. So anyone using Prolia needs to be switched to another bone med when they discontinue.

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