Had osteoporosis since I was 19 now 30 - Bone Health and O...

Bone Health and Osteoporosis UK

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Had osteoporosis since I was 19 now 30

9 years ago•3 Replies

I was diagnosed with osteoporosis when I was 19 although they think I have had it all my life I have had both my knees reconstructed as they grind away I need both knee replacements but as I'm 30 they won't do then, I'm at the point where I have had enough I live in chronic pain I take constant pain killers 2x 50mg tramadol 4 times a day gabapentin 300mg 4x 4 times a day paracetamol when needed and they have Aldo given me oral morphine this week when required what like do I have I try loosing weight but where I can hardly walk because of pain it never comes off does anyone have any advice x

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kerrijayne

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KarenP19 years ago

You could maybe try Slimming World? I lost two stone with them and you don't have to exercise. (although it's better if you do). I too have osteoporosis and have knee pain, that I just put up with. I don't know what else to suggest other than maybe trying to keep your weight down. Is there any exercise you can do that would help? Can you swim?

olive27099 years ago

You need a hug, so sending you a very gentle one. What part of the country do you live,what kind of support do you get. Can understand about knees, they can only replace 3times each lasting 10/15 years are you in touch with OP society . Sorry if seem to be asking questions excuse being have daughter of 40 with RD and as a mum this is what I would be working through with her Olive

Scorer9 years ago

Dear Kerrijayne,

You have all my sympathy. I have had rheumatoid arthritis for over 40 years, since I was 22 years old. My knees were a major problem from the age of about 28 years. Have had in excess of a hundred local steroid injections in them over the years. All those years ago, I was told I was too young to have replacement joints, despite being slim. Over the years I have had continuing problems with my knees and had severe pain which has severely affected my mobility. Have had several periods when I have had to resort to using a wheelchair. Three times in the last twelve months alone.

Do persist in your efforts to get replacement joints. See another consultant for a second opinion if necessary. You need to manage your own case. A life in constant pain requiring strong painkillers is not an option. Lose some weight and get help to do so if necessary. Most people take the ability to walk pain-free for granted. For some of us it is a dream. Take action whilst you are still so young.

Best wishes Pam X

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