I rang the helpline the other day because I had a worry. spoke to a very nice nurse who gave me advice.Following that advice I rang the resp nurse and she is coming out to see richard t reassess his oxygen.Since being on the new drug regime he is eating better and looking better, and hasnt had an infection for 2 whole months, but his breathing is definitely getting worse, and even with 02 at 2l, he is going blue tinged on any movements. When we go out and I push him in his chair he has the amb 02 on 3l, yet when he gets out to go to the toilet he has turned blue by the time he comes out. He now wees in a bottle to save trips upstairs, I found an old glass spaghetti jar, just the job .It is the natural [progression of the illness but I wondered if he needed his 02 turning up, hence the visit from the nurse, so thanks blf.
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