I am a fifty one year old married man with two children.
Not too many weeks ago i was a Support Co-ordinator (full time volunteer) with County Community Projects, working up up 50 hours a week with the Family Services team and specialising in children with behavioural and emotional difficulties, engaging with the likes of Amberley Ridge, Coln House School, multi agency meetings, CAMHS and professionals at all levels. Hardly the kind of job for a neurotic hypochondriac ???
Now, I struggle to inhale because mucus blocks my airway. Constantly using 999 for ambulance, vitals always good and with oxygen, although my levels are fine, mucus clears and I'm fine till the next time.
Because of the lack of investigations I have had contact with, and advised by, various research centres, respiratory hospitals and heart/lung foundations including London Bridge Hospital, Royal Brompton Hospital and Adult Cystic Fibrosis Centre. These experts in lung disorders inform me that I should, of course, be very concerned and that my local NHS members should share that concern.
Because of this, I am considered to be a neurotic hypochondriac by Gloucester Royal and Churchdown Surgery and am told that I should not attempt to self diagnose. I totally agree.. I should not need to, of course. The most unprofessional behaviour that I have shown is to refuse to leave the surgery without a nebuliser.
With no official diagnosis, I stand alone, as a full time carer for my wife, who has MS, two children, a 7 month great dane and a doberman.
I had no choice than to stage a sit-in at Churchdown Surgery until I was given a nebuliser. I am NOT going to die of asphyxiation by mucus plugging in front of my wife and children just because the likes of Dr. Henderson and Dr. Mcrumb think that I over react about my situation. I have been told that I act like a neurotic hypochondriac by a Doctor at hospital, purely because he has not physically witnessed any of my attacks.
I will continue to attempt to video these attacks and post them to youtube under "mucus block attacks" to show the arrogant neglect that Churchdown Doctors Surgery, St. Johns Avenue, Churchdown are showing.
Dr Mcrumb actually laughed at my 10 year old son as he was trying to explain my 'attack' to him on the phone yesterday, and told him "don't be so silly".
Following this, Dr Mcrumb came to visit, prescribed more ventolin, and assured me that he would source a portable nebuliser but in the same breath tells me that I will not get one because he does not deem my condition to be serious enough. If this is the case,,, why does he continue to prescribe three different nebuliser solutions and agree that I need those ?