Saw consultant yesterday for results of the hrct scan and lung function tests. Told that I have had a deterioration of 25 and 20 per cent on function tests. Thinks I have ipf but not able to confirm without biopsy which she doesn't recommend as too invasive due to my age and other problems I have, but still thinks it is ipf. No treatment other than steroids but does not recommend. Not able to take esbriet because my breathing was 91 and nice does not allow this drug to be prescribed to people who has over 80 per cent. My question is what happens to all people with ipf who cannot be given this slowing down drug? Go back in 4 months to see if further deterioration takes me to the level I can be accepted for this treatment. Very confusing!