Hi guys I wanted to come share my sto... - Lung Conditions C...
Hi guys I wanted to come share my story with you :)
What a wonderful and very interesting story that brought tears to my eyes. Your wonderful a wish you the very best in life take care x
Thank you hun, it was difficult going on camera, I avoid mirrors as best I can lol but I've had so many tell me my story was like theirs that I thought it was worth going public x
Definitely was it was lovely to share it wonderful you are x
Thank you I really appreciate it 
No problem 👌
What a story! What a strong woman. A few of our members have been told their symptoms are because of depression or anxiety. Well done for battling through cass.
Thank you mrsmummy lol I didn't feel very strong but it's true that all of what has happened has shaped who I am. The problem with mental health is it's the easy answer, easy treatment, the more people walking around on antidepressants the better, kinda like the stepford wives, hence the "ain't no wifey" hat haha
I loved the hat too.
Thank you for telling your story , it does sound a quite familiar experience especially if you have ever been diagnosed with mental illness or distress. Best wishes for the future xx
Thank you for taking the time to watch Katie. Doctors tend to pigeon hole people, we are complex beings both mentally and physically, if there is a problem with one part of us there is often other underlying issues. People would say I'm depressed now but I feel more mentally in control than I've ever been. Life's not easy but I think it isn't for everyone in one way or another xx
Your right Orchidcass77, everyones life has its problems some people more than others. Doctors do pigeon hole people often in the wrong pigeon hole might I add. Doctors are human too, get ill like us and often opt for the least line of resistance, which most times means doing what the boss says i.e the government not what the patient needs. Hope you are well today I guess after all this time you have learn't to manage your illness including the emotional turmoil. I just wish our physical health could be addressed more readily instead of being treated like over anxious patients even when we have proven it is not all in the mind on more than one occassion. I could tell you lots of other stories to make you cringe and just recently I found out nothing has changed which is sad. Enjoy your day. x
Sorry to hear that Katie, I know how that feels. I do get frustrated when I feel they know more about us than we do, or we shouldn't Google things! I gave birth four times without any pain relief, yet when I said I'm in too much pain they look like *you must be imagining it's worse than it is* in fact I don't even mention it until it's so extreme I can't hold it in any more. Its awful to think it but sometimes I wish they could just feel it a little while. Then of course you get those who think you're just being lazy, I've been told I could run a marathon if I set my mind to it as if I'm choosing to be a burden to my family and society...cos yeah I can't wait for the day I can't get to the toilet on time and my children have to change my underwear for me :/ where my lung disease issues are concerned it's strange I feel my pulmonary team will listen to me, if I say I need meds, but the consultant really doesn't want to call the rheumatoid lung disease as it is, she would rather blame the ra drugs than accept it's the ra itself causing the issue. I think that is probably just because there are no options left with the RA-ILD diagnosis. I respect it's a massive diagnosis to give but I'd rather not be pussy footed around about it x
Hi, l did reply last night but that seems to have disappeared. You are an inspiration and very strong, and l hope life is kinder to you after all you have been through. Xxxxxx
Thank you sassy I really appreciate you taking time to watch and comment with kindness. My main aim now is to defy odds and stick around to see my family grown up and doing ok. I take each day as it comes and I push myself to live as fully as I possibly can. There is so much I have no control over but what I can control is how I handle it. I really hope sharing that publicly will help others as they go thru those darker days x
Wishing you well cass. Xxxx
And you hun x
Thank you for sharing your story. I'm so sorry you've had so many health issues in your life.
It's especially hard when you're not taken seriously. You're an inspiration. Please be strong and keep sharing with the world.
Thank you AKD, when I said in the video that it was easier once I was diagnosed, it really was, as awful as that seems cos I certainly would prefer not to be sick at all. I've now got evidence coming out my ears and my doctors now take my health very seriously, indeed my Rheumatology nurse has mentioned making me a case study as I really think they don't know what's going on with me. I still have the odd frustration like when my lungs do seem good to them but I can feel it coming before the signs show, I can predict my blood results based on how I feel and I've been right about my health enough times that they should listen. Now if I say I need antibiotics and steroids over the phone they prescribe without question and allow me to choose how and when to taper. I hear so often talking to newly diagnosed people how they have such similar stories to mine and I want to take them to DR's myself and make them listen to what happened to me. Lol hope it helps others to know they are not the only ones x
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