Hello all. This is my first post here. Am so glad to find your forum. You've helped me a lot already and I've only been here for a week or 2: THANKS SO MUCH 👏👏👏👏
I've been managing bronchiectasis symptoms for decades, alongside an increasing collection of diagnosed & debilitating multisystem conditions. 5 years ago, in my late 50s, things came to a head. Soon a top NHS lupus & Vasculitis clinic at a famous teaching hospital took me on and began to treat me for systemic lupus and sjogrens. Then we discovered I'd been diagnosed with lupus as an infant & teen. Anyway, I'm responding well to daily systemic treatment with a cocktail of immunosuppressives.
Early this year, my lupus clinic referred me to immunology at the same hospital due to what we now know is my early onset hypogammaglobulinaemia & lymphopenia - both of which I was living with for many years prior to lupus etc treatment with immunosuppressives began 5 years ago.
So the NHS & I have been managing all these years with my dodgy contradictory combination of immune dysfunctions: my immune system in overdrive due to the lupus etc, and my immune system damped down due to specific antibody deficiency/CVID
Immunology has me packing a home emergency kit of coamoxiclav 625 (2 weeks worth). You've helped me understand how to collect lab samples prior to starting antibiotics 👍👍👍👍
Now I just need to know: how do you say it...should it sound like :
And also I just want to say: it's a big relief to find you guys are here! (Thanks to babs, who sent me here❗️)