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pvc & pacs

Htye1992 profile image
8 Replies

I’ve been struggling with loads of PVCs everyday with so many. I’ve been to the doctors and had an Echo don’t which come back with a healthy heart and a 24hr holter they did definitely see I have PVC but wasn’t concerned and said it’s stress.

But can lots of PVC damage your heart in the long run? Getting really worried .

Thank you.

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Htye1992
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8 Replies
wattsy1985 profile image
wattsy1985

I think if your Echo came back healthy then you really need to try and find a way to switch off from it, from the outside looking in it would seem that maybe your anxiety is maybe the route cause of the symptoms you are currently facing . Have you thought about reaching out to someone that could help support with that? Getting your anxiety under control might start to help with everything else you are feeling

Odgie profile image
Odgie

Did they say what your eptopic burden is? I have been through similar and my burden is 27%. So have beta blockers and further investigation to see if it's a physical thing (congested arteries etc).

When it's that high they do worry about the heart weakening over the years. An ablation may be needed. So if yours is low and every now and then you should not worry. Easier said than done. The catch 22 of heart issues :) thinking about them makes you aware and makes the anxiety worse and the symptoms more apparent.

AmatureKnitter profile image
AmatureKnitter

Hi Hyte1992, PVC veteran here (& PACs & SVT). Grab a cuppa, long response, lots of info.

PVCs only cause problems, usually cardiomyopathy, if a high burden, >10%, is sustained over a period of time. There are studies on PubMed on the effect of a sustained high PVC burden on Ejection Fraction.

So 2 key questions: What's your burden? And what's the impact on your quality of life? (Some people are troubled by them and other's aren't.)

Ask for your holter results. Decide how much of a problem they cause you. There are many treatments and a lot you can do to help yourself.

My experience: I barely felt my 25%+ burden, I was just extremely tired all the time, couldn't exercise, do the gardening, hang the laundry out. Washing my hair made me puff. GP said all this was 'normal for a woman your age'. BNP was normal (no heart failure). It took a further 2 years and paying privately to get tests and treatment.

My PVC cheat sheet:

1) I studied, learned my habits, looked for triggers.

2) Cut out caffeine, nicotine - all stimulants - these are a very common trigger

3) I'm careful with intense exercise, e.g., Spin, HIIT classes. They hype people up, force quick changes in HR and dehydrate quickly - stay hydrated

4) Cut out alcohol and anything that vasodilates quickly - some high dose amino acids have caught out gym-goers too.

5) Because my burden was so high I paid for an echo, stress test & MRI to check there was no underlying pathology. High burdens are occasionally caused by valve issues for example.

6) Got my bloods done privately, my GP wouldn't, I bought a comprehensive test from Medichecks - liver, kidneys, lipids, vitamins, minerals, electrolytes, hormones, thyroid, it cost a bit, but was well worth it. I found that:

Folate/B9 - I was low

B12 - I was high (probably in response to low Folate)

VitD - extremely low

My thyroid function was normal - that's another common trigger

Iron Status - I was very deficient, but again it was blamed on being 'a woman your age'. Turned out the drugs I take for duodenitis, gastritis and GERD caused malabsorption.

7) Tried to get my stomach sorted

8) Tried to carry on as normal as much as I could.

Eventually I worked out that my triggers were mostly nutritional deficiencies, with some flare-ups caused by an aggravated vagus nerve. I take supplements now and my last holter showed 0.3% burden. It's taken a further 2 years from my initial set of tests to get things under control - so 4 years from the onset of symptoms.

My cardiologist prescribed Bisoprolol up to 10mg/day and Flecainide 50mg x2 daily to start, and I'm monitored by an arrhythmia nurse at my local hospital. I didn't take the Flecainide. I'm currently coming out of a flare-up caused by another dip in iron status so I've titrated down to 1.25mg Bisop daily and will stop again shortly.

There's an excellent FB group "Heart Arrhythmias, PVCs PACs AF and Others Sharing and Help Group" with 17k members. A lot of support and advice on there.

Htye1992 profile image
Htye1992 in reply toAmatureKnitter

thank you for this information really helped ,

I think my burden was class as low ,but that was nearly a year ago and I feel like mine are getting worse so I’ll have to maybe get another holter done .

I’ve had all my bloods taken for Thyroid and iron and all that come back all absolutely fine.

I think it could possibly be hormonal for me so that’s my next question for the doctor to check for.

Thank you your response though really helped .

Odgie profile image
Odgie

This is amazing, thank you. I am starting my journey and this is very encouraging.

Ham1846 profile image
Ham1846

Hi I get them as well. I’ e had a holti monitor, stress test and echocardiogram and all tests are fine. Problem with mine is I get them everyday and they sporadic so never know when it’s going to happen as I have an ecg on my I watch and also the cardiologist told me to get a kardiamobile which also records your heart pattern but usually as mine is only one missed beat and then I don’t know when the next one will be they are hard to catch even though some days I can have upto 40 spread out through the day/eve. I am on bp medication and take 1.25mg bisoprolol but feel since I’ve been on bisoprolol they are worse not better. I keep telling gp and cardiologists they are getting worse and some disturb my vision but as all my tests are fine they aren’t interested even though they affect my quality of life. Maybe invest in the kardiamobile device if you can afford it as it links to an app on your phone and stores the readings you can download them to a pdf and print or email them to a dr. I keep all mine incase I can capture them and have been told I have atrial ectopics. Also is your bp ok as high bp can cause ectopics

Choccie55 profile image
Choccie55

My ectopics started in my early 30s like you and I’m sure they are related to hormones. Mine were worse around my period and increased massively during peri menopause. Maybe keep a diary to see when they are occurring. Stress is a factor too. Generally they are nothing to worry about and shouldn’t put any strain on your heart. Look into mindfulness to help you relax.

Htye1992 profile image
Htye1992

thank you for the reassurance.

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