Breathlessness : I was told last week I... - British Heart Fou...

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Breathlessness

Squiggs1 profile image
7 Replies

I was told last week I have heart failure on top of afib. I've had afib for over 2 years and even my consultant didn't tell me I have heart failure . I had catheter surgery 4 weeks ago but palpitations and breathing is worse. I asked the Dr last week would an inhaler help and she said no. Is there anything I can do at home to help with my breathing. I don't want to go to hospital as they just give me the pills I have at home

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Squiggs1
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7 Replies
10gingercats profile image
10gingercats

I am not a medic. I write only based on my own experience.Whenever I have had breathlessness...rarely in my case...I have been found to have fluid in my lungs or around my heart.This is usually dealt with by using a prescribed diuretic like Flurosimide that dries up the fluid. and this has helped the breathlessness.My GP has prescribed this or occasionally my cardio.

Squiggs1 profile image
Squiggs1 in reply to10gingercats

Thank you,I'm on that too,just recently..doesn't seem to be helping at the moment,so I'll give it another week

Maydayuk profile image
Maydayuk

Hi, I have just had my aortic valve replaced, I was doing so well. Walking a couple of miles a day. Then all of a sudden, I went down hill fast. I couldn't move, my chest and neck pains were so bad. Chest burning could not breathe. It turns out my hearts struggling. It's inflamed with pericardial effusion. I can't get a straight answer from the hospital in respects of will it get better. One doctor told me it was heart failure. I was on intravenous antibiotics for a few days and added candersarten to my normal meds. If anyone can shed some light on this, I would be grateful. I had a echo it showed ejection fraction 45% with septal dyskinesia. I have a few complications but is there a light at the end of the tunnel or am I a loss cause. My life seems like endless pills and hospital visits. I sympathise with you on not wanting to be in hospital.

Squiggs1 profile image
Squiggs1 in reply toMaydayuk

Yes,it seems never-ending doesn't it..hopefully there is light at the end of the tunnel,just have to keep asking questions to the consultants and Dr's,and if they skip round it,then I think complain higher up

Maydayuk profile image
Maydayuk in reply toMaydayuk

Update. I was back in hospital over xmas. I had another echo. I have pericarditis which will take a while to treat. Good news is my heart seems to be getting a little stronger the ejection fraction is now 55% which takes me out of heart failure. Although the pain of the inflammation is awful. I'm hoping in time I will gain some normality.

Alfie33 profile image
Alfie33

I'm exactly the same as you, I asked for oxygen, but they said it won't make a difference as my oxygen levels are fine its my heart that isn't working correctly so its not supplying my organs with the oxygen they require. When I'm gasping for breath I use a hand held fan in front of my mouth, which seems to help

Squiggs1 profile image
Squiggs1 in reply toAlfie33

Yep,I use a fan too,and have one next to my head in bed,helps another,its just doing normal things that I can't do at the moment..its pretty scary and unfortunately have to give up work..the Dr is calling me on the 16th to explain why I wasn't told I have heart failure,just afib..that'll be an interesting conversation

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