Afib : I’m In persistent Afib since... - British Heart Fou...

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Pinky100 profile image
10 Replies

I’m In persistent Afib since 28th feb if your heart rate is good does that mean your afib is under control ? And will afib always cause heart Failure

Afib is all New to me

Thanks

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Pinky100 profile image
Pinky100
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10 Replies
Stucoo profile image
Stucoo

Are you on any medication to control your heart rate such as Bisoprolol? From my understanding, if left in AF with a high heart rate it will lead to heart failure. Many people live with persistent AF.

Pinky100 profile image
Pinky100 in reply to Stucoo

Yea I’m on Bisoprolol and blood thinners my heart rate is in the 60s my consultant said I prop be in permanent afib

Doonedog profile image
Doonedog in reply to Pinky100

Hi If it's any consolation I'm on the same medication and have had AF for 5 years and I'm still playing doubles tennis with those around my age group. I'm 74 and have the approval of therapists at my hospital.

I only mention this to help relieve any anxiety you may have feeling it restricts you.

Pinky100 profile image
Pinky100 in reply to Doonedog

That’s great are you in permanent afib ?

Doonedog profile image
Doonedog in reply to Pinky100

Hi yes I am . They tried " plugging me into the national grid " and everything went back to normal for 2 weeks then gradually it went irregular again and so I live withit.

Fortunately I dont know it's there. I don't get palpitations. I just get a little out of breath if I don't exercise.

I was devastated when I found out as I've played squash ànd tennis since my early 30s. .

It's good you know about and the GP as they can help you avoid a stroke.

Wishing you all the best.

purpleswimmer profile image
purpleswimmer

Hey. I have a Kardia reader and since buying it six weeks ago I have been permanently in Afib even when heart rate 'normal ' . This worries me as it appears to severely limit what exercise and daily activities I can do and then there is the constant worry of heart failure again. I am on bisoprolol and lisnoprol also bumetanide diuretic and half dose of digoxin. I have been on other meds but I have added problem in that I suffer badly from side effects so permanently feeling sick and gets worse more meds I take. I cant even take the meds to help my indigestion and burping as it makes me feel sick. I have cardio appointment in two weeks that I have asked for as want to discuss other meds or options for me. I am learning that if you want things to change you have to be assertive and take charge of your health. I keep notes on how I feel daily and what readings I am getting. I had heart failure in January so very new at this. Good luck. Xx

Pinky100 profile image
Pinky100 in reply to purpleswimmer

Have you been ask about a ablation ? I’m not sure if to go ahead and have one they said 50/50 it will work and only be for short term

Sorry you have heart failure can that be reversed with medication?

purpleswimmer profile image
purpleswimmer in reply to Pinky100

My appointment in two weeks is hopefully to discuss next step. I do not quite understand the whole heart failure bit, i.e. which came first and do I still have both. Will have to wait and see. Xx

Stucoo profile image
Stucoo in reply to Pinky100

I was in persistent AF and had an ablation in 2017. I had been mostly AF and drug free for nearly 3 years until my AF returned in April. I am now persistent and back on the meds that make me feel so lethargic. I am now waiting for a cardioversion and appointment with my EP. I was told that it would come back eventually and that a second ablation would be required, however there is no cure for AF.

Ianc2 profile image
Ianc2

Hi Pinky

I have had afib for about 20 years now. Along the way I have had a cardioversion, which worked for a little while, various drugs, heart valves replaced, an ablation, which worked for a good while, and I am much improved.

However I still have an irregular heartbeat that I have got used to. If I don't do anything silly it doesn't bother me too much. I can and do exercise every day. I have a fitbit, which helps me to differentiate between being active /busy and taking continuous exercise which gets everything moving and raises your heart rate. The only snag is that in my experience, If I slack off for a fortnight I can feel my fitness start to go.

I have managed to get my weight inside my BMI and keep a very careful eye on the food that I eat. I generally follow a low carb version of the Mediterranean diet and avoid alcohol and restrict sugary foods. Cakes and biscuits are a very rare treat

My medical notes contain a little gem that refers to measuring blood pressure in that using an electronic machine produces unbelievable results. 240/120 etc, producing much excitement , reaching for prescription pads, etc. Get the old 'pump it up' sphygometer out and it is usually somewhere around 140/80. Shove the pad back in the drawer.

There is a fair amount of evidence around on how changing lifestyles can impact heart behaviour. The hard part is making the changes.

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