6 years on....still all the same.

[Mgs333]

I have posted on this site several times over the years about my mystery palpitations that I get at night time when I am trying to sleep. I have had these every night for the past 6 years and despite every known test to man and investigations by a couple of different cardiologist, not to mention weird sleep studies,nothing had changed.

I must have gone through several thousand beta blockers and aspirin in the process, which by know I imagine that am probably immuned to anyway.

So, the latest and probably the last chapter in this sorry tale is that my cardiology team have concluded that after all the tests etc... my heart in in generally good shape and my heart health has no issues. ! So they have signed my off the program and won't be doing anything else. Wow....I didn't expect that !....but still palpitations havn't changed in fact they are getting stronger.

As a parting shot my consultant said that if things persist then that means that my heart palpitations are a symtom of something else rather than the root cause ......And that is a whole new can of worms.

Thanks for reading this.....good luck everyone on your own journey.

[Murderfan58]

Did they ever do an MRI on your heart with electrodes on your chest and large plate protecting them and had dye injected . I knew after an echo and bubble echocardiogram there was a hole . After having the MRI which lasted just over 90 minutes they could see the connections between the chambers of my heart where intact but had small hole where the flap didn't shut before birth between my heart and lungs but its small. I get breathless at times palpitations and heart flutters occasionally and in Flecainide and Apixaban I have Paroxysmal atrial fibrillation.

Have you seen your GP since being signed off from cardiology about the palpitations. And are you on any heart medication or other medication which could give you heart palpitations?

[Mgs333 in reply to Murderfan58]

Thanks for your reply.....Yep Ive had the works done....Full Angiogramme with calcium score, 2 MRI.s, 3 CT scans, countless halter moniters....etc etc.......my last heart MRI was the one that decided for them that the treatment should stop, it showed that my heart was good and my heart health was 10 yrs better than my actual age !

[Murderfan58 in reply to Mgs333]

Sorry your have been abandoned like this without any reasons why you have palpitations. Before I had my neurological condition diagnosed was in hospital for 3 weeks in 1988 each week the 3 drs I saw had written attention seeking,a fake and mentally ill on my records . Plus a nurse shouted at me you only have post natal breathing depression as my son was 8 months old. Luckily I had a good GP ehi knew me very well.

But didn't get my diagnosis of what I was born with until 2022 and it's rare . But at least I know . I am 66 now . But better late than never . 💐

[Hanaheart]

yes, about the same for me...no explanation, had the tests etc...am on Eliquis and metoprolol. Am trying chiro manipulation and acupuncture now - nothing in literature about these 'curing' palps, but I am trying. What a hellish journey to have to live with....happens as soon as I go from standing to lying down each night...can run the night also....good to go in the morning..lol Keep searching also. I also belong to a few FBook pages on a.fib...one is a natural one....lots of interesting experiences posted. cheers

[Garthboy]

wow 6 years , I am 18months in with mine. No explanation apart from it could be perimenopause?!

Had ecg , echo and tape on twice all good and healthy athletic heart apparently. Mine happen daily I get them when I squat bend over and when I start to exercise ask my heart to work fast I get them in clusters then they settle down.

Wish I had an answer as my anxiety can be really bad off having them. I was having over 200 a day now I get 10/15 so huge improvement I know but still no answer other than I could be loosing oestrogen which can cause this in women.

Thank you for sharing 🙏