Ivabradine

[Displacedheart]

Has this helped anyone with symptoms- I been advised this could help

[TheBesty]

It slows your heart to give it a stronger pump. I'm on 5mg 2x a day with no problems. My EF is improving, might be due to this and all the other meds im on... As for it helping with symptoms, im not sure, still get symptoms on bad days or if I over-do it.

[Displacedheart in reply to TheBesty]

Does it give you more good days than u had without it? Just one day break of these symptoms would make me so happy. Thank you for your reply

[TheBesty in reply to Displacedheart]

I'm not sure which of the cocktail of drugs they gave me work the best as I was put on alot at the same time in hospital. But since then my EF has risen from 13% to 31%, I have more good days than I used to and my heart is stronger than it was. I think ivabradine can help with the chest pain, if you have a read there do seem to be some grotty side effects... I must have got lucky and didn't really have any negative effects.

[Displacedheart in reply to TheBesty]

Wow that's a brilliant improvement and I hope it continues to improve for you !! Thanks for taking the time to reply

[VelvetSky]

Hi, be careful with Ivabradine, I had to stop taking it, it gave me hallucinations, I saw bars on the wall and black snakes!

[TheBesty in reply to VelvetSky]

That sounds pretty awesome to be honest

[TheBesty in reply to VelvetSky]

My Ivabradine are boring compared to yours... Swap? 😆

[Displacedheart in reply to VelvetSky]

Now that is scary, thank you so much I'm vulnerable in this area so this could help me loads. Thank you for sharing your experience

[VelvetSky in reply to Displacedheart]

Not only did I have hallucinations but my elderly Aunt had been taking it and she said she saw black bars on the wall but that was long before I took it so we didn’t believe her, thought she was just a bit senile. She’s long gone now but I still feel guilty we didn’t believe her. I still wear my slippers at night if I cross our hallway, the snakes were worst there, I’m still not totally convinced there isn’t an odd one about. How stupid is that!

[Displacedheart in reply to VelvetSky]

That's not stupid at all, I would feel uneasy to. You nan will understand-don't feel guilty - I have adhd and bad mental health so this has really helped me be aware so thank you.

[Cherrelleford]

Hey I had this medication suggested by the transplant team. I had to stop it after 3 months as it cause my pulse rate to plummet to just 35bpm and I had a 3 day hospital stay because of it. I didn't have any other side effects that I can remember x

[TheBesty in reply to Cherrelleford]

Makes sense, when i was hospitalised my resting heart rate was 120BPM, I was put on ivabradine and Metoprolol, now my heart rate is a steady 65-75 BPM... My pulse dropped below 40 when they were trying different meds out on me, feels like your gonna die! Horrible

[Displacedheart in reply to Cherrelleford]

This is why I worry to cause I have nocturnal bradycardia- but high bmp when awake. Thank u for sharing ur experience

[Displacedheart]

Thank you everybody for your replies it's nice to have few experiences- I am worried because sometimes my bmp is to low and sometimes to high. The hallucinations scare me because I have adhd and bpd already - I'm so desperate for a break of these symptoms. Thank you so much everybody you have. Helped alot. Thank you and take care

[Blearyeyed]

You can get a little visual disturbance at first on Ivabradine and some funny dreams.It's a period of adjustment.

It helps to start on a low dose and build it up to prevent the initial side effects but if you have to start at a higher dose because of immediate need your body does adjust , although it can take 4-6 weeks to get used to it.

You can have a combination of fatigue from the illness you take it for bashing heads with the fatigue that your body feels getting used to a new medication but it passes .

I can sometimes get a bit of numbness and coldness in my extremities but I also have lower blood pressure and Raynaud's so this can happen.

It's been a lifeline for me with my Dysautonomia, and my 22 year old daughter also takes it now.

I can get low BP at night so I was recommended to make sure I took my final dose 4 hours before bed. It did help. I only take it in two doses a day now so my last dose I take at 6pm.

If you find that the visual changes or hallucinating does not settle after you've given it some chance or it's getting worse contact your Cardiologist or GP and see if you might need a dose change or an alternative medication.

The best thing you can do on a new drug is give yourself more rest, pace your day , hydrate properly, and try to reduce your stress as you get used to it otherwise the anxiety or overdoing it will make you feel worse , take care , Bee

[Displacedheart in reply to Blearyeyed]

Wow thank you, that's alot of information that will definitely help me, I will see the cardiologist in a few weeks. Get my cpet test resukts too. Right now I would do anything to feel a little bit better - going to give them a try. Thank you for taking your time to reply and really helped me, take care too

[beemiles]

Hi, I’ve been taking it for 6 months now for suspected microvessel vasospasms and it’s helped enormously. Previously I’d tried beta blockers and CCB’s, but none had really helped with the chest pain, breathlessness, tachychardia and pounding, but ivabradine has been the best yet. No side effects to speak of so I’d give it a go if it’s been suggested