Heart child

[Mumof4girls82]

Hi all, new on here. My daughter was born with a complete avsd, fixed with surgery at 15 months old, which left a mild leak on her mitral valve. She has done amazing for years with no medication. Recently she became symptomatic and has just been diagnosed with a leak on her aortic valve and has just started on lisinopril. He life has changed dramatically in such a short space of time. Just wondering if there is anyone on here with any kind of similar story? I’m finding it all very overwhelming, and feel a little lost. Would be good to speak with people who can share their experiences.

[BeKind28-]

Hello

I can see you posted 4 months ago and no one seems to be able to relate including myself

As a Mum this must feel really overwhelming

The only suggestion I can give hoping that you might have found some support groups that can help is to phone the BHF Nurses they are so good I think they would be able to answer any questions you have

I hope that you feel better than when you did this post and have had a Happy Christmas x

Heart Helpline team on 0300 330 3311 Mon-Fri 9-5pm