Heartfailure Plan

[suebeba]

My husband has heart failure , pace maker defibrillator his ef was at 20% have read on nhs about plan and contact numbers but have no advice about this . Does anybody have this in place thanks

[uzininemm]

Hello.

Information provided is sparse so I can only tell you what happened to me three years ago. Has your husband left hospital yet?

Prior to release from hospital, a specific heart nurse came to speak to me, gave me some info and then arranged for me to attend a specific heart ward for further monitoring, this was about one week after leaving if I remember, there they took my weight did my bloods and checked how I was.

In my case I only went twice, and then was discharged from there. I then awaited a referral to the heart rehab team (took a bit of time, but I didn't think this was a problem).

At this they took my blood pressure monitored by exercise. These results were reported to my consultant.

I had a telephone call with my consultant (late but once again in my case I actually thought this was to my advantage - the consultant actually agreed). then 12 months later I had a face to face with the consultant and another MRI.

Hope this goes someway to answering your question, I actually thought my aftercare was first class.

By the way your GP should have been notified wwhen your husband left hospital.

[suebeba in reply to uzininemm]

Thankyou ,

[Avagra in reply to uzininemm]

What was the MRI for and is it ok to have as I’ve got one next week ( cardiac MRI )

[uzininemm in reply to Avagra]

Hello, sorry didn't see your message earlier.

Now I am not medically trained, but as far as I know it will give your consultant a better and more detailed information as to what is happening to your heart.

Yes they are Ok to have, and I would recommend it. I have had 2 overall.

They can be a bit marmite in that some people don't like them, but I had no problem and they really are cutting edge to help the consultant.

Understandable you will be nervous, however do remember the hospital staff will want it to be a success. It should take about 40 minutes.

Just one tip if you are feel any Claustrophobia, try and look up and behind and you should see the opening to the scanner.

Do go for it and I wish you well.

[Avagra in reply to uzininemm]

Thank you so much for your support xx

[Pouchielou1972]

I have an ICD and had an MRI recently. The pacing team turned the defibrillator function off to enable me to have the MRI and turned it back on after. They won't do an MRI on someone with an implantable device without firstly being seen by the pacing team to adjust the settings.