I've finally got the letter today from my consultant about the 48 hour tape I had done on the 8th December last year waited over 6 months for it .Consultant is largely reassured by the results.
I'm still having spells of dizziness and lightheadedness and fatigue my blood oxygen levels seem to be between 95 and 97% sometimes go below 92%.
With the warmer weather room temperature has got up to 29 degrees but feel cold to the touch and not sweating and my hands turn a blueish grey at times.
I wonder if you have Reynaud syndrome? Which is nothing to do with cardiovascular problems and isn’t curable but is manageable - see NHS website for more information. I could be wrong though!!
Happyrosie.
Thank you for your reply don't think it's Reynauds as only been like it since my heart attack.
I understand. It’s just that my husband suddenly acquired what you have - out of the blue - and it was diagnosed as R. Your story is not dissimilar. Just a thought.
Have you an SPO2 monitor at home that you can use to check your sats when your hands turn blue? If you're desaturating and that's causing your hands to turn blue, you need that looking into ASAP.
Yes I do.. blood oxygen levels at night drop to 92% then recover to 96 or 97 l% at intervals during the night according to my smartwatch but it doesn't do it every night bizarre.
Those oxygen levels are quite normal I think. Everyone's O2 drops at night. Mine are regularly low 90s during the day and drop periodically into the high 80s at night, but they don't seem concerned in any way. Try not to worry, I became obsessed with my O2 levels. (I don't have full lung capacity on one side due to them severing my phrenic nerve during bypass surgery) As you know worry can lead to all sorts of problems.
I also have faint feeling episodes. My blood pressures drops to 94/60 and pulse late 40s. I think its all the meds im on. Could this be happening to you? Maybe a reevaluation of your meds would be an idea?
All the best, Susie.
Cold intolerance can be due to anemia,slender build,underactive thyroid. Your fingernails turning bluish ( acrocyanosis) is your body's attempt to shunt blood to the interior of your body to give it warmth. The concern is when lips turn blue ( central cyanosis). It appears you need a specialist in internal medicine to conduct a thorough investigation and to order appropriate testing because of ongoing lightheadedness, fatigue & cold intolerance.
I though a month was bad, still waiting for a letter to arrive at my gp.
My consultants in a different foundation trust area.
NHS England trusts don’t communicate.
I'm in Scotland, waited about six months after 48hr tape. Things moved fast when my symptoms suddenly got worse though, went to A&E, three days later had a pacemaker! I was lucky, got an op slot due to a cancellation otherwise I'd have spent over a week in ICU, not very nice...
You are fortunate to be in Scotland at least they talk to each other.
Finally got a date for angiogram
Got My Operation Date Today
I got my date for my Op ! Excited 😊 
Day of my CPET appointment is finally here 
