Wolff- Parkinson- White Syndrome, Right accessory pathway

[SoniaK123]

Hi, My 15 year old son has just been diagnosed with Wolff- Parkinson- White syndrome with his accessory pathway thought to be right anterior. I would love to hear from anyone who has WPW and a right pathway especially on their management. Obviously it’s quite a worrying time for us in the early stages of diagnosis and any support would be warmly appreciated.

[july2020]

Hi

Such a diagnosis can be distressing but it is the start of putting an end to the episodes, I assume, he has suffered.

My wife was diagnosed in her 20s, after she started with the episodes when she was 10. She has the WPW variant Lown-Ganong-Levine syndrome.

She is now in her 60's, unfortunately, she can't remember where the pathway was apart from the fact it was near to the main bundle.

Not long after the diagnosis she had an ablation and she has had no episodes since the procedure.

Hopefully your son will now get the treatment he needs.

[SoniaK123 in reply to july2020]

Thank you so much for taking the time to reply , very grateful for such positive stories .

[Astronomyrules]

Hi, I can't help with any details, but my sister was diagnosed with WPW in her early 20s. She is now 70 and as far as I know, (shes lived in the US for 45 years), it has not been a major problem in terms of requiring medical intervention, at least in her case. I hope this gives you some reassurance as you must be very worried about your son's diagnosis.

[Choccie55]

I have SVT which is similar. I’m on the waitlist for an ablation which is what I assume will be recommended for your child. A sudden fast heart rate causes a lot of anxiety especially when you have no idea when it’s going to happen. The doctors maybe able to teach your son vagal manoeuvres to stop episodes if appropriate. Mindfulness has helped me deal with the anxiety of the diagnosis. Hopefully an ablation will cure him.