echo results : sorry had a few issues... - British Heart Fou...

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echo results

NLGA profile image
NLGA
7 Replies

sorry had a few issues adding this to my post

I just received my echo results and would be interested in views

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NLGA profile image
NLGA
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7 Replies
Dkhanka profile image
Dkhanka

you need to ask / investigate left & right atrium being dilated ?

Murderfan58 profile image
Murderfan58

Could you ask your GP or cardiologist to explain what it means ? My cardiologist just told in face to face the results of my echo and bubble echo. Was easy to understand then.

When I was referred to AF clinic the nurses who ran it where very easy to talk to and explained things to me in plain English.

When I had my MRI my cardiologist explained exactly what would happen and when he sent me the results it was in plain English not like your results. Turns out the hole in my heart is a flap that should have closed before birth between my lungs and heart. Apparently we have flaps round our heart which close before birth. At least the connections between the chambers of my heart are intact and have strong heart function. As long as I don't get chest pain under the care of my GP. Getting breathless at times is nothing to worry about. I miss heart beats. Get heart flutters and palpitations but they don't last long . So I don't worry about them. On Flecainide and Apixaban.

Found out about the hole in 2020 had to laugh had 2 minor ops and 3 major ones all with a dicky heart. 2021 found out where the hole is . Because it's small and no chest pain safer to leave it. I will be 66 next month.

Only found out in 2022 what my neurological condition was and only because my new neurologist had my whole genome genetically tested and it's rare . I was born disabled in 1958 . But I look at it this way better late than never to find out what has been wrong with me my whole life. Thanks to finding others with it I am no longer alone or weird. My whole life now makes sense.

Hope someone can explain the results for you and what it means for your future .

NLGA profile image
NLGA in reply toMurderfan58

Good points

But this test was done in December I have been issued with no appointment since ( I was told to expect a letter ) I had to go to the medical records with the help of PALS to even get a result

The cardiologist secretary/ department do not even return calls and I have made countless ones

Murderfan58 profile image
Murderfan58

Sorry about the way you are being treated. I live in north west England. The Healthcare here is brilliant unlike the healthcare I got where I used to live. I moved here 4.5 years ago. My old neurologist could have had the same test done and put me on Clonazepam to stop my limb jerks which I had from 1988 when I was 29. Being in them changed my life no limb jerks or seizures since March 2020 as my new neurologist started me in them before sending my blood to be tested.

My old GP did an in house ECG and diagnosed LVH and never sent me to see a cardiologist.

My new GP did hence me finding out about my heart and I have PAF .

It really is a postcode lottery where you live.

NLGA profile image
NLGA in reply toMurderfan58

Yes it’s frustrating

I had a monitor in November echo December and didn’t get either results to I went to PALS they were getting nowhere and pointed me in my rights to see my medical records

The annoying thing was in August I asked the cardiologist at my appoint when will I see him again he said December after the test results are back and it got to February without a word

Then last week I saw another chap with 2 days notice of the appointment he never had my results but said I was still having AF episodes from the monitor report and would need a Ablation but had no report of my echo infront of him

Deejay62 profile image
Deejay62

Everything is normal or good. Aortic dimensions are within range. The normal ranges are in brackets. Your EF55% is normal. Speak to your doctor or whoever asked for tests about your dilated atriums or contact BHF nurses. They might be able to help.

At least you don’t have heart failure.

NLGA profile image
NLGA in reply toDeejay62

Thank you so much

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